1188 Listening to the Community to Lead Science: An Engagement Approach to Identifying Sleep Research Priorities

Abstract Introduction Partnered Research in Sleep Medicine (PRISM) is a PCORI-funded engagement initiative that addresses sleep health through community conversations, awareness events, and development of shared resources to build capacity for partnered sleep research. PRISM includes convening of an Advisory Board (AB), comprised of 16 local and national partners, to discuss patient-centered solutions for common sleep disorders like OSA and insomnia. We summarize the AB’s process for identifying high-priority sleep topics/areas to address. Methods We applied modified Nominal Group Technique (NGT) to achieve group consensus on priority topics. During a 90-minute virtual AB meeting, the question was discussed in small breakout rooms (1. OSA/insomnia patients; 2. industry/provider partners). A comprehensive list of priorities was captured from those discussions. The PRISM engagement team reviewed items and grouped similar responses into 7 categories: awareness (general), awareness (comorbidities), awareness (populations affected), access, causes of sleep disruption, treatment, and outcomes. Grouped items were vetted at the next AB meeting. The AB was surveyed with the finalized items and asked to vote for their top 3 categories/priorities. In the second voting round, the AB revoted having reviewed the previous voting round results to represent group consensus. Results Round one of voting (n=14) ranked areas as follows: (1) Awareness (comorbidity), (2) Treatment, (3) Outcomes, (4) Access, (5) Awareness (general), (6) Awareness (populations affected), (7) Causes of Disrupted Sleep. Round two (n=11) resulted as: (1) Awareness (comorbidity), (2) Treatment, (3) Outcomes, (4) Awareness (general), (5) Access, (6) Causes of Disrupted Sleep, (7) Awareness (populations affected). Conclusion Consensus for the top 3 priority areas for sleep researchers to address include: (1) increasing awareness about comorbidities [defined by the need to raise awareness about how poor sleep is connected to other health conditions including heart disease, mood disorders, and having both insomnia and sleep apnea]; (2) treatment [defined as the need to ensure treatment meets the needs of the individual for comprehensive care and to develop and identify appropriate tests and treatments]; and (3) outcomes [defined as the need to prioritize outcomes that are valued by patients and meet provider care goals]. Support (if any) PCORI (EACB-32112); UPenn Division of Sleep Medicine and Chronobiology and Sleep Institute