ABSTRACT NUMBER: ESOC2026A2008 POST DISCHARE COPING DIFFICULTY SCALE AS A PATIENT-REPORTED OUTCOME MEASURE AFTER STROKE

Abstract Background and aims Patient-reported outcome measures (PROMs) are important for understanding the impact of stroke and identifying strategies to improve post-stroke outcomes. This study describes coping as a PROM, a dimension that is not routinely assessed. Methods This was an observational study of ischaemic stroke patients. Structured follow-up telephone calls were conducted at 3 months post-stroke by trained Stroke Liaison Officers. PROMs included coping, assessed by the Post-Discharge Coping Difficulty Scale (PDCDS), and health-related quality of life, assessed using the EQ-5D-5L. Results Among the 257 ischaemic stroke patients (median age 71 years [IQR 63–81]; 61% male), coping outcomes assessed using the PDCDS are shown in the Figure. High coping difficulty was reported by 36.5% for managing their medical condition and by 33.6% for taking care of their medical needs. In other domains, high coping difficulty was less prevalent, ranging from 3% to 19%. Overall, 36.5% of patients reported high coping difficulty in ≥2 domains, 25.1% in ≥3 domains, and 21.2% in ≥4 domains. These findings indicate that coping difficulties were multidimensional, with a substantial proportion of patients experiencing challenges across multiple coping domains. Among patients reporting EQ5D5L problems, 36% did not report high coping difficulty. Conversely, among patients without EQ5D5L problems 12% reported high coping difficulty. Conclusions Coping is valuable PROM among stroke patients given the prevalence of difficulty detected. Coping difficulties commonly span multiple domains, and reliance on EQ-5D-5L alone may overlook a subset of patients experiencing coping challenges. Conflict of interest Deidre Anne De Silva: Nothing to disclose. Ng Wai May: Nothing to disclose. Carol Tham Huilian: Nothing to disclose. Woon Fung Peng: Nothing to disclose. Renganathan Madhumitha: Nothing to disclose. Muhamad Amirulaldi Bin Syed Ahmad Shah: Nothing to disclose. Figure 1 - belongs to Results

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Publication Details

Journal
European Stroke Journal
Published
2026-05-01
DOI
https://doi.org/10.1093/esj/aakag023.133
Primary Topic
Stroke Rehabilitation and Recovery
Type
article
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article

ABSTRACT NUMBER: ESOC2026A2008 POST DISCHARE COPING DIFFICULTY SCALE AS A PATIENT-REPORTED OUTCOME MEASURE AFTER STROKE

Carol Huilian Tham, Deidre Anne De Silva, Wai May Ng, Fung Peng Woon et al.
European Stroke Journal
Stroke Rehabilitation and Recovery
article

ABSTRACT NUMBER: ESOC2026A2008 POST DISCHARE COPING DIFFICULTY SCALE AS A PATIENT-REPORTED OUTCOME MEASURE AFTER STROKE

Carol Huilian Tham, Deidre Anne De Silva, Wai May Ng, Fung Peng Woon, Madhumitha Renganathan, Muhamad Amirulaldi Syed Ahmad Shah
article en

Abstract

Abstract Background and aims Patient-reported outcome measures (PROMs) are important for understanding the impact of stroke and identifying strategies to improve post-stroke outcomes. This study describes coping as a PROM, a dimension that is not routinely assessed. Methods This was an observational study of ischaemic stroke patients. Structured follow-up telephone calls were conducted at 3 months post-stroke by trained Stroke Liaison Officers. PROMs included coping, assessed by the Post-Discharge Coping Difficulty Scale (PDCDS), and health-related quality of life, assessed using the EQ-5D-5L. Results Among the 257 ischaemic stroke patients (median age 71 years [IQR 63–81]; 61% male), coping outcomes assessed using the PDCDS are shown in the Figure. High coping difficulty was reported by 36.5% for managing their medical condition and by 33.6% for taking care of their medical needs. In other domains, high coping difficulty was less prevalent, ranging from 3% to 19%. Overall, 36.5% of patients reported high coping difficulty in ≥2 domains, 25.1% in ≥3 domains, and 21.2% in ≥4 domains. These findings indicate that coping difficulties were multidimensional, with a substantial proportion of patients experiencing challenges across multiple coping domains. Among patients reporting EQ5D5L problems, 36% did not report high coping difficulty. Conversely, among patients without EQ5D5L problems 12% reported high coping difficulty. Conclusions Coping is valuable PROM among stroke patients given the prevalence of difficulty detected. Coping difficulties commonly span multiple domains, and reliance on EQ-5D-5L alone may overlook a subset of patients experiencing coping challenges. Conflict of interest Deidre Anne De Silva: Nothing to disclose. Ng Wai May: Nothing to disclose. Carol Tham Huilian: Nothing to disclose. Woon Fung Peng: Nothing to disclose. Renganathan Madhumitha: Nothing to disclose. Muhamad Amirulaldi Bin Syed Ahmad Shah: Nothing to disclose. Figure 1 - belongs to Results

European Stroke JournalVol. 11(Supplement_1)
SingHealth (SG)
Openalex Percentile: Top 10%
Stroke Rehabilitation and Recovery
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