The Mental Health Impacts of the <scp>COVID</scp> ‐19 Pandemic on Adults With Intellectual and Developmental Disabilities: A Qualitative Study
BACKGROUND: While COVID-19 had a devastating impact on mental health worldwide, little is known about its effects on adults with intellectual and developmental disabilities. We used a community-based participatory approach to study this population's mental health experiences. METHODS: Six focus groups were conducted: four with adults with intellectual and developmental disabilities (n = 21) and two with caregivers (n = 13). Conventional content analysis and thematic network analysis were utilised. RESULTS: We identified cascading impacts of the pandemic on the mental health of this population. Sub-themes included: (1) environmental effects, (2) emotional effects and (3) physical and behavioural effects of COVID-19. Five modifying factors were identified. CONCLUSIONS: The COVID-19 pandemic, while specific in its restrictions and timing, illustrated and exacerbated unmet mental health needs of adults with intellectual and developmental disabilities. These results suggest opportunities for empirical research and policy development, relevant for future emergencies and ongoing medical and non-medical support of this population.
Authors
- Holly K. Tabor (ORCID: https://orcid.org/0000-0003-1005-5008)
- Justin Steinberg
- Krysta S. Barton (ORCID: https://orcid.org/0000-0002-3424-3911)
- Colleen Vega
- Sandra Walls
- Lauren Clarke (ORCID: https://orcid.org/0000-0002-1541-9723)
- Megan Cvitanovic
- Kobie Respicio
- Sue Digre
- Lisa G. Rosas (ORCID: https://orcid.org/0000-0003-4053-7972)
- Amanda Young
- Bradley Margetts
- Felicia Hui
- Timothy Seay‐Morrison
- Sarah Taylor
Institutions
- Advocates for Youth (US)
- California State University, East Bay (US)
- Special Olympics (US)
- Stanford Health Care (US)
- Stanford Medicine (US)
- Stanford University (US)
Publication Details
- Journal
- Journal of Applied Research in Intellectual Disabilities
- Published
- 2026-05-01
- DOI
- https://doi.org/10.1111/jar.70240
- Primary Topic
- Down syndrome and intellectual disability research
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Patient-Centered Outcomes Research Institute