Satisfaction With Stoma Care Services and Confidence in Self-Management: Insights From Patients and Carers

OBJECTIVE: Patients with colorectal cancer experience immense physical, psychological, and social challenges after stoma formation surgery. It is crucial to provide adequate support and assist in building confidence in the management of a stoma. This study aimed to assess the satisfaction with stomal care service and confidence level among patients with a new stoma and their family carers. METHODS: This is a prospective cross-sectional study. Patients who had undergone colorectal resections with stoma formation and carers were recruited from inpatient and outpatient settings of a tertiary public hospital from August 2023 to August 2024. Questionnaires assessing satisfaction and confidence with self-care were administered. Descriptive statistics summarized the demographic and clinical data, and patients' and carers' satisfaction and confidence levels. Qualitative responses were analyzed using content analysis. RESULTS: The majority of participants (n=80) reported high satisfaction with stoma care services before and after surgery, with more than 90% feeling well supported and informed. However, only 83.8% felt confident managing stoma care after discharge, with lower confidence reported in more complex tasks like measuring and securing the appliance. Five key themes related to challenges and needs in managing stoma care emerged: (i) visual and physical limitations; (ii) emotional and psychological barriers; (iii) difficulty with independent care; (iv) system and appliances challenges; and (v) learning and training needs. CONCLUSIONS: This study highlighted the importance of structured postdischarge education to sustain psychosocial support and tailor resources to meet the diverse needs of patients with a stoma.