The phenomenon of acute stroke and acute stroke care provision from the perspective of people with stroke: a descriptive phenomenological study

PURPOSE: Experiencing a stroke is a distressing event, however little is known about the person with stroke's experience of the phenomenon of acute stroke, or of acute stroke care. Understanding the first 48 h of the acute stroke experience from the perspective of the person with stroke could inform the delivery of person-centred care and identify future acute stroke healthcare priorities. MATERIALS AND METHODS: A descriptive phenomenological approach using semi-structured interviews was conducted with fourteen participants in the acute hospital setting within seven days of their stroke. RESULTS: Three global themes described their experiences: navigating the unchartered territory of acute stroke, the importance of human connection, and the person with stroke's perspective of the right care. Participants transitioned through varied physical and emotional stages in their early stroke experience. Remaining connected to their friends and families was important, and they valued timely provision of information, early rehabilitation, and the provision of person-centred care in helping them navigate their acute stroke experience. CONCLUSION: Health professionals working in acute stroke could prioritise tailored information provision, early rehabilitation, person-centred care and enabling contact with family and friends to meet the needs of people with stroke.