The World Federation of Neurology Specialty Group in ALS/MND: toward strategic partnership and new frontiers

A memorandum of understanding was recently established between the World Federation of Neurology Specialty Group and the International Alliance of ALS/MND Associations. This new strategic partnership brings together leading clinicians and researchers with national and regional organizations dedicated to supporting ALS patients, their families, and caregivers. The purpose of partnership is to strengthen global coordination in research, education, advocacy, and clinical care for people living with MND. The agreement outlines shared priorities, including promoting equitable access to diagnosis and treatment, supporting capacity building in low- and middle-income regions, and facilitating the exchange of scientific knowledge and best practice. Both parties commit to joint initiatives such as international meetings, guideline development, clinical trials and data-sharing efforts that advance understanding of disease mechanisms and therapeutic approaches. Together, these organizations represent the scientific and human dimensions of the ALS challenge. Through partnership, the WFN Specialty Group and the International Alliance aim to accelerate progress toward improved outcomes and, ultimately, effective treatments for MND worldwide.

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Publication Details

Journal
Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration
Published
2026-04-30
DOI
https://doi.org/10.1080/21678421.2026.2663915
Primary Topic
Amyotrophic Lateral Sclerosis Research
Type
article
Field-Weighted Citation Impact
0.00
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article

The World Federation of Neurology Specialty Group in ALS/MND: toward strategic partnership and new frontiers

Patricia Lillo, Cathy Cummings, Angela Genge, Jeffrey Rosenfeld et al.
Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration
Amyotrophic Lateral Sclerosis Research
article

The World Federation of Neurology Specialty Group in ALS/MND: toward strategic partnership and new frontiers

Patricia Lillo, Cathy Cummings, Angela Genge, Jeffrey Rosenfeld, Satoshi Kuwabara, Matthew C Kiernan, Julian Grosskreutz
article en

Abstract

A memorandum of understanding was recently established between the World Federation of Neurology Specialty Group and the International Alliance of ALS/MND Associations. This new strategic partnership brings together leading clinicians and researchers with national and regional organizations dedicated to supporting ALS patients, their families, and caregivers. The purpose of partnership is to strengthen global coordination in research, education, advocacy, and clinical care for people living with MND. The agreement outlines shared priorities, including promoting equitable access to diagnosis and treatment, supporting capacity building in low- and middle-income regions, and facilitating the exchange of scientific knowledge and best practice. Both parties commit to joint initiatives such as international meetings, guideline development, clinical trials and data-sharing efforts that advance understanding of disease mechanisms and therapeutic approaches. Together, these organizations represent the scientific and human dimensions of the ALS challenge. Through partnership, the WFN Specialty Group and the International Alliance aim to accelerate progress toward improved outcomes and, ultimately, effective treatments for MND worldwide.

Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration
Montreal Neurological Institute and Hospital (CA), Chiba University (JP), Loma Linda University Health Care (US), Hospital de São José (PT), International Alliance of ALS/MND Associations (GB), South Eastern Sydney Local Health District (AU), San Jose Hospital & Trauma Center (PH), University of Chile (CL), Neuroscience Research Australia (AU), University of Lübeck (DE)
Partnerships for the goals
Openalex Percentile: Top 11%
Amyotrophic Lateral Sclerosis Research
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