Kotawêw: indigenous doulas in the HIV care continuum in Canada
Indigenous women, two-spirit, transgender, and gender-diverse people in Canada experience disproportionate HIV and sexually transmitted and blood-borne infection (STBBI) inequities shaped by colonial violence and systemic racism. While Indigenous doula work is resurging as reproductive justice, its application to HIV/STBBI prevention and care remains underexplored. We examined how Indigenous HIV/STBBI doula care is envisioned and what competencies are needed to support implementation.This community-based study was guided by an Indigenous Community Guiding Circle of people living with HIV/STBBI and anchored in cultural protocols and ceremony. We conducted 40 in-depth interviews with Indigenous community members living with HIV/STBBI (n = 20), relatives (n = 7), helpers/service providers (n = 8), and Elders/Knowledge Holders (n = 5). Interviews were analyzed using thematic analysis guided by Indigenous storywork principles.Participants described doulas as kin and "helpers" who: (1) provide sustained, nonjudgmental presence across diagnosis, parenting, substance use, and grief; (2) reconnect people to culture, land-based healing, and ceremony; (3) offer peer mentorship rooted in lived experience; (4) deliver practical HIV/STBBI education and stigma reduction; and (5) enact structural advocacy across healthcare, justice, housing, and child welfare systems.Indigenous HIV/STBBI doula care offers a culturally grounded, peer-led model with potential to strengthen engagement across the HIV/STBBI care cascade.
Authors
- Gayle Restall (ORCID: https://orcid.org/0000-0002-8656-6261)
- Rusty Souleymanov (ORCID: https://orcid.org/0000-0002-2619-2704)
- Jody Jollimore (ORCID: https://orcid.org/0000-0002-6005-9720)
- Leslie Spillett
- Laurie Ringaert
- Margaret Kîsikâw Piyêsîs
- Ann Favel
- Christie Johnston
- Laverne Gervais
- Linda Larcombe (ORCID: https://orcid.org/0000-0002-7828-1290)
- Albert McLeod
- Randy Jackson
- Paula Migliardi
- Kimberly Templeton
- Tara Christianson (ORCID: https://orcid.org/0000-0001-7174-8989)
- Alexandra King
- Skye Wikjord
- Melissa Morris
- Michael Payne
- Candace Neumann
Institutions
- Winnipeg Regional Health Authority (CA)
- European Union (BE)
- University of Saskatchewan (CA)
- Kanichi (United Kingdom) (GB)
- Nine Circles Community Health Centre (CA)
- Canadian AIDS Treatment Information Exchange (CA)
- Impact (CA)
- University of Manitoba (CA)
- Hamilton Health Sciences (CA)
- McMaster University (CA)
Publication Details
- Journal
- AIDS Care
- Published
- 2026-04-27
- DOI
- https://doi.org/10.1080/09540121.2026.2662083
- Primary Topic
- HIV/AIDS Research and Interventions
- Type
- article
- Field-Weighted Citation Impact
- 0.00