Kotawêw: indigenous doulas in the HIV care continuum in Canada

Indigenous women, two-spirit, transgender, and gender-diverse people in Canada experience disproportionate HIV and sexually transmitted and blood-borne infection (STBBI) inequities shaped by colonial violence and systemic racism. While Indigenous doula work is resurging as reproductive justice, its application to HIV/STBBI prevention and care remains underexplored. We examined how Indigenous HIV/STBBI doula care is envisioned and what competencies are needed to support implementation.This community-based study was guided by an Indigenous Community Guiding Circle of people living with HIV/STBBI and anchored in cultural protocols and ceremony. We conducted 40 in-depth interviews with Indigenous community members living with HIV/STBBI (n = 20), relatives (n = 7), helpers/service providers (n = 8), and Elders/Knowledge Holders (n = 5). Interviews were analyzed using thematic analysis guided by Indigenous storywork principles.Participants described doulas as kin and "helpers" who: (1) provide sustained, nonjudgmental presence across diagnosis, parenting, substance use, and grief; (2) reconnect people to culture, land-based healing, and ceremony; (3) offer peer mentorship rooted in lived experience; (4) deliver practical HIV/STBBI education and stigma reduction; and (5) enact structural advocacy across healthcare, justice, housing, and child welfare systems.Indigenous HIV/STBBI doula care offers a culturally grounded, peer-led model with potential to strengthen engagement across the HIV/STBBI care cascade.

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Publication Details

Journal
AIDS Care
Published
2026-04-27
DOI
https://doi.org/10.1080/09540121.2026.2662083
Primary Topic
HIV/AIDS Research and Interventions
Type
article
Field-Weighted Citation Impact
0.00
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article

Kotawêw: indigenous doulas in the HIV care continuum in Canada

Gayle Restall, Rusty Souleymanov, Jody Jollimore, Leslie Spillett et al.
AIDS Care
HIV/AIDS Research and Interventions
article

Kotawêw: indigenous doulas in the HIV care continuum in Canada

Gayle Restall, Rusty Souleymanov, Jody Jollimore, Leslie Spillett, Laurie Ringaert, Margaret Kîsikâw Piyêsîs, Ann Favel, Christie Johnston, Laverne Gervais, Linda Larcombe, Albert McLeod, Randy Jackson, Paula Migliardi, Kimberly Templeton, Tara Christianson, Alexandra King, Skye Wikjord, Melissa Morris, Michael Payne, Candace Neumann
article en

Abstract

Indigenous women, two-spirit, transgender, and gender-diverse people in Canada experience disproportionate HIV and sexually transmitted and blood-borne infection (STBBI) inequities shaped by colonial violence and systemic racism. While Indigenous doula work is resurging as reproductive justice, its application to HIV/STBBI prevention and care remains underexplored. We examined how Indigenous HIV/STBBI doula care is envisioned and what competencies are needed to support implementation.This community-based study was guided by an Indigenous Community Guiding Circle of people living with HIV/STBBI and anchored in cultural protocols and ceremony. We conducted 40 in-depth interviews with Indigenous community members living with HIV/STBBI (n = 20), relatives (n = 7), helpers/service providers (n = 8), and Elders/Knowledge Holders (n = 5). Interviews were analyzed using thematic analysis guided by Indigenous storywork principles.Participants described doulas as kin and "helpers" who: (1) provide sustained, nonjudgmental presence across diagnosis, parenting, substance use, and grief; (2) reconnect people to culture, land-based healing, and ceremony; (3) offer peer mentorship rooted in lived experience; (4) deliver practical HIV/STBBI education and stigma reduction; and (5) enact structural advocacy across healthcare, justice, housing, and child welfare systems.Indigenous HIV/STBBI doula care offers a culturally grounded, peer-led model with potential to strengthen engagement across the HIV/STBBI care cascade.

AIDS Care
Winnipeg Regional Health Authority (CA), European Union (BE), University of Saskatchewan (CA), Kanichi (United Kingdom) (GB), Nine Circles Community Health Centre (CA), Canadian AIDS Treatment Information Exchange (CA), Impact (CA), University of Manitoba (CA), Hamilton Health Sciences (CA), McMaster University (CA)
Gender equality
Openalex Percentile: Top 10%
HIV/AIDS Research and Interventions
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