Integrating the lived experience within the non-surgical oncology advanced practice framework: a pilot study

Background: Oncological services face increasing demand, driven by an ageing population, new treatment opportunities and workforce challenges, which have expanded the roles of nurses, allied health professionals and pharmacists in the UK. However, inconsistencies in training, education and role expectations are evident, highlighting the need for a patient-centred curriculum in non-surgical oncology. Aims: This pilot study explored the perceptions of individuals with lived experience of receiving care from advanced practitioners to influence the development of the national non-surgical oncology advanced practice framework to standardise education and training. Methods: A qualitative descriptive approach was used for the two-phase study design. An initial online questionnaire gathered an overview of the understanding of the role ( n =7), followed by an online focus group to examine the framework in more detail ( n =4). Descriptive statistical analysis was performed to identify patterns in data. Ethical approval was granted by the university, and convenience sampling was used to collect data. Results: Responses highlighted the importance of formal introductions, advanced practitioners' visibility and the inclusion of patients' voices. Participants stressed the need for advanced practitioners to demonstrate leadership, communication, educational, research and treatment expertise. They also noted that practitioners' attitudes and behaviours were vital for building trust and confidence in patient care. Conclusions: Individuals with lived experience valued the four pillars of practice and the humanistic behaviours necessary to build confidence and trust in the advanced practitioner. Implications for practice: These findings will further influence and shape the final version of the non-surgical oncology advanced practice framework, developed by a team led by the lead author.