Co-design of antipsychotic medicines information resources – making PROGRESS in shared decision-making

OBJECTIVES: We aimed to improve the shared decision-making process for those offered antipsychotic medicines by co-designing a suite of accurate and accessible medicines information video resources. METHODS: We adopted the four core activities of the Double Diamond Design Thinking Model - Discover, Define, Develop, and Deliver. We first explored the full range of stakeholder needs including pharmacists, psychiatrists, nurses, and most importantly experts-by-experience, in relation to existing antipsychotic medicines information resources. Using a validated tool, we assessed the understandability and actionability of the manufacturer's patient information leaflets and digital resources accessed following an internet search. Using this information, we refined our insights into a clear problem statement and solution. RESULTS: We identified gaps in readability, understandability, and actionability with existing antipsychotic medicines information resources. Consequently, we developed prototype information resources that we iteratively reviewed and validated along with our expert panel of key stakeholders. We uploaded our six antipsychotic medicines information videos to our digital platform where they can be freely accessed by those participating in shared decision-making. CONCLUSIONS: Our antipsychotic medicines information videos address an unmet need in the shared decision-making process. Using a human-centred and innovative approach, we prioritised input from key stakeholders to provide clear, accurate, and accessible information to support informed choices in psychosis recovery.