The Value of Public Inquiries, Ethical Accountability, and Patient Voices: Reflections on the Infected Blood Inquiry

INTRODUCTION: This article contributes to the continuing conversation in Haemophilia about the UK Infected Blood Inquiry (IBI). Discussion within the journal to date has largely foregrounded professional and technical perspectives. AIM: This article aims to bring back into view two elements central to the Inquiry-patient voice and the roles of law and ethics-and consider what this means for how the lessons of the IBI are interpreted in clinical and public discourse. METHODS: The article engages with published reflections and commentary to consider how responsibility has been framed, how consent has been understood, and what is at stake in the shaping of professional memory. RESULTS: The article shows how narrowed framings of consent, appeals to clinical authority, and selective uses of language risk marginalising those infected and affected. It argues that such narratives continue to shape how responsibility is allocated and how the Inquiry will be remembered within professional discourse. CONCLUSION: Accountability, transparency, and recognition must remain central as the implications of the Inquiry continue to unfold, and as processes of reconciliation begin.

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Publication Details

Journal
Haemophilia
Published
2026-04-20
DOI
https://doi.org/10.1111/hae.70296
Primary Topic
Ethics in medical practice
Type
article
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article

The Value of Public Inquiries, Ethical Accountability, and Patient Voices: Reflections on the Infected Blood Inquiry

Richard Gorman, Bobbie Farsides, Clive Smith, Emma Cave
Haemophilia
Ethics in medical practice
article

The Value of Public Inquiries, Ethical Accountability, and Patient Voices: Reflections on the Infected Blood Inquiry

Richard Gorman, Bobbie Farsides, Clive Smith, Emma Cave
article en

Abstract

INTRODUCTION: This article contributes to the continuing conversation in Haemophilia about the UK Infected Blood Inquiry (IBI). Discussion within the journal to date has largely foregrounded professional and technical perspectives. AIM: This article aims to bring back into view two elements central to the Inquiry-patient voice and the roles of law and ethics-and consider what this means for how the lessons of the IBI are interpreted in clinical and public discourse. METHODS: The article engages with published reflections and commentary to consider how responsibility has been framed, how consent has been understood, and what is at stake in the shaping of professional memory. RESULTS: The article shows how narrowed framings of consent, appeals to clinical authority, and selective uses of language risk marginalising those infected and affected. It argues that such narratives continue to shape how responsibility is allocated and how the Inquiry will be remembered within professional discourse. CONCLUSION: Accountability, transparency, and recognition must remain central as the implications of the Inquiry continue to unfold, and as processes of reconciliation begin.

Haemophilia
Brighton and Sussex Medical School (GB), Durham University (GB), Memorial Blood Centers (US), Haemophilia Foundation Australia (AU), Institute of Medical Ethics (GB)
Openalex Percentile: Top 8%
Ethics in medical practice
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The Value of Public Inquiries, Ethical Accountability, and Patient Voices: Reflections on the Infected Blood Inquiry — Richard Gorman, Bobbie Farsides, et al. · Haemophilia (2026) | TGRS Research Map | TGRS