Support Needs of Young People Who Have a Parent With Young Onset Dementia: A Qualitative Study

= 10) and subjected interview transcripts to a qualitative content analysis. We describe findings according to six domains: (i) Family Structure and Roles; (ii) The Emotional Experience of Living with or Caring for a Parent with Young-Onset Dementia; (iii) Sibling Experiences and Relationships; (iv) What Helped to Manage the Situation; (v) Gaps in Support; and (vi) Support in an Ideal World. We found that young people experiencing parental young-onset dementia require support to understand the illness, anticipate changes in their parent and their family life, and access relevant services. Young people need peer support opportunities as well as respite options to 'step back' from caregiving roles when living with a parent with young-onset dementia. Professional services that can both support the parent with dementia and build the capacity and knowledge of their family are critical. These services are most effective where they utilise family sensitive practice. Managing the emotional and practical demands of living with and caring for a parent with young-onset dementia can be an overwhelming task for young people, who require tailored individual and family-based support.