“An App That Truly Works for Us”: Co-Designing a Mobile Health Intervention to Support the Transition to Adulthood for the Latino Autism Community

Background: Autistic Latino young adults face significant disparities and a service cliff during their transition to adulthood. While mobile health (mHealth) applications offer a scalable solution, few evidence-based, culturally adapted programs have been successfully transitioned to mHealth platforms for this population. This study aimed to conduct a multi-stakeholder needs assessment to guide the development of a culturally adapted mHealth app designed to accompany the ¡Iniciando!/Launching! treatment program to support young adults transitioning to adulthood. Methods: This study used a multi-phase, mixed-methods design. An initial needs assessment survey was administered to three key stakeholder groups: autistic young adults (N = 27), their Spanish-speaking parents (N = 26), and program clinicians (N = 9). An iterative refinement process followed, which included qualitative consultations with a Community Advisory Board (CAB) of autistic self-advocates and a User Experience/User Interface (UX/UI) team, a focus group with clinicians (N = 8), and two targeted follow-up surveys to define specific app features. Results: A strong consensus emerged on the need for features supporting executive functioning (e.g., reminders, task management) and practical transition-to-adulthood goals (e.g., employment and education hubs). The iterative design phase translated abstract concepts, like the highly-rated “social games,” into concrete, user-informed specifications, including a scaffolded learning workflow and a gamification-based token economy. Young adults emphasized the importance of a modern user experience and expressed skepticism toward conversational AI, while parents and clinicians stressed that the app must supplement, not replace, human interaction. Conclusion: This iterative, community-based approach provides a clear, stakeholder-driven blueprint for creating a highly desired mHealth intervention. By directly integrating the perspectives of end-users, this process ensures the final product is tailored to the specific needs of autistic Latinos, with the potential to reduce health disparities.

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Publication Details

Journal
Journal of Technology in Behavioral Science
Published
2026-04-16
DOI
https://doi.org/10.1007/s41347-026-00628-0
Primary Topic
Autism Spectrum Disorder Research
Type
article
Field-Weighted Citation Impact
0.00

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article

“An App That Truly Works for Us”: Co-Designing a Mobile Health Intervention to Support the Transition to Adulthood for the Latino Autism Community

Antonio F. Pagán, Ana Esparza, Grace Gogola, Cecilia Montiel-Nava et al.
Journal of Technology in Behavioral Science
Autism Spectrum Disorder Research
article

“An App That Truly Works for Us”: Co-Designing a Mobile Health Intervention to Support the Transition to Adulthood for the Latino Autism Community

Antonio F. Pagán, Ana Esparza, Grace Gogola, Cecilia Montiel-Nava, Breana McCormack-Sadler, Miriam Ortiz, Katherine A. Loveland
article en

Abstract

Background: Autistic Latino young adults face significant disparities and a service cliff during their transition to adulthood. While mobile health (mHealth) applications offer a scalable solution, few evidence-based, culturally adapted programs have been successfully transitioned to mHealth platforms for this population. This study aimed to conduct a multi-stakeholder needs assessment to guide the development of a culturally adapted mHealth app designed to accompany the ¡Iniciando!/Launching! treatment program to support young adults transitioning to adulthood. Methods: This study used a multi-phase, mixed-methods design. An initial needs assessment survey was administered to three key stakeholder groups: autistic young adults (N = 27), their Spanish-speaking parents (N = 26), and program clinicians (N = 9). An iterative refinement process followed, which included qualitative consultations with a Community Advisory Board (CAB) of autistic self-advocates and a User Experience/User Interface (UX/UI) team, a focus group with clinicians (N = 8), and two targeted follow-up surveys to define specific app features. Results: A strong consensus emerged on the need for features supporting executive functioning (e.g., reminders, task management) and practical transition-to-adulthood goals (e.g., employment and education hubs). The iterative design phase translated abstract concepts, like the highly-rated “social games,” into concrete, user-informed specifications, including a scaffolded learning workflow and a gamification-based token economy. Young adults emphasized the importance of a modern user experience and expressed skepticism toward conversational AI, while parents and clinicians stressed that the app must supplement, not replace, human interaction. Conclusion: This iterative, community-based approach provides a clear, stakeholder-driven blueprint for creating a highly desired mHealth intervention. By directly integrating the perspectives of end-users, this process ensures the final product is tailored to the specific needs of autistic Latinos, with the potential to reduce health disparities.

Journal of Technology in Behavioral Science
The University of Texas Rio Grande Valley (US), The University of Texas Health Science Center at Houston (US)
Autism Speaks, Eunice Kennedy Shriver National Institute of Child Health and Human Development
Quality Education
Openalex Percentile: Top 14%
Autism Spectrum Disorder Research
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