Waiting as a frontier: (Un)making patients for uterus transplantation in Denmark

Uterus transplantation (UTx) is an emerging frontier in reproductive medicine, that offers women born without a uterus the possibility of gestation through transplantation. While clinical programs are being established elsewhere, UTx remains unavailable in Denmark, where it has existed for nearly a decade as an anticipated yet inaccessible option. Based on in-depth interviews conducted between 2023 and 2025, this article explores experiences of waiting for UTx in Denmark. Drawing on interviews with ten women diagnosed with Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome and eight medical professionals involved in contemplating its implementation, this article examines how UTx is lived and negotiated in the absence of clinical access. We conceptualize waiting as a frontier in its own right; a generative space where social, temporal, and emotional dimensions shape medical innovation and patienthood. By foregrounding waiting as a central feature of emerging medical technologies, the article demonstrates how biomedical futures are shaped not only in laboratories and policy arenas but also in intimate, uncertain, and emotionally charged spaces among those who wait.

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Publication Details

Journal
Social Science & Medicine
Published
2026-04-16
DOI
https://doi.org/10.1016/j.socscimed.2026.119291
Primary Topic
Organ and Tissue Transplantation Research
Type
article
Field-Weighted Citation Impact
0.00

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article

Waiting as a frontier: (Un)making patients for uterus transplantation in Denmark

Zainab Afshan Sheikh, Alexandra Middleton, Anja M. B. Jensen
Social Science & Medicine
Organ and Tissue Transplantation Research
article

Waiting as a frontier: (Un)making patients for uterus transplantation in Denmark

Zainab Afshan Sheikh, Alexandra Middleton, Anja M. B. Jensen
article en

Abstract

Uterus transplantation (UTx) is an emerging frontier in reproductive medicine, that offers women born without a uterus the possibility of gestation through transplantation. While clinical programs are being established elsewhere, UTx remains unavailable in Denmark, where it has existed for nearly a decade as an anticipated yet inaccessible option. Based on in-depth interviews conducted between 2023 and 2025, this article explores experiences of waiting for UTx in Denmark. Drawing on interviews with ten women diagnosed with Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome and eight medical professionals involved in contemplating its implementation, this article examines how UTx is lived and negotiated in the absence of clinical access. We conceptualize waiting as a frontier in its own right; a generative space where social, temporal, and emotional dimensions shape medical innovation and patienthood. By foregrounding waiting as a central feature of emerging medical technologies, the article demonstrates how biomedical futures are shaped not only in laboratories and policy arenas but also in intimate, uncertain, and emotionally charged spaces among those who wait.

Social Science & MedicineVol. 401
University of Copenhagen (DK)
European Commission, Danmarks Frie Forskningsfond, HORIZON EUROPE Framework Programme, European Research Council
Gender equality
Openalex Percentile: Top 21%
Organ and Tissue Transplantation Research
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