Exploring storylines on patient involvement in the Nordic welfare system: Insights from Danish academic literature

Patient involvement (PI) has become a central focus within Nordic healthcare systems. However, the concept remains ambiguous and is interpreted differently across disciplines, which poses challenges for both research and practice. This study explores how PI is conceptualized in Danish academic literature published between 1990 and 2024. Using a scoping review and a meta-narrative approach, we identified three disciplinary storylines: Health Care; Organizational and Management; and Society. These storylines represent distinct yet overlapping logics concerning the roles of patients, professionals, and institutions, and operate at different analytical levels (micro, meso, and macro). By unpacking these narratives, the study contributes to a more nuanced understanding of the assumptions and tensions embedded in the concept of PI. Our findings underline the importance of engaging critically with the theoretical foundations of PI and suggest directions for future empirical research that can explore how these divergent logics play out in practice.

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Publication Details

Journal
Nordisk välfärdsforskning | Nordic Welfare Research
Published
2026-04-15
DOI
https://doi.org/10.18261/nwr.11.2.1
Primary Topic
Mental Health and Patient Involvement
Type
article
Field-Weighted Citation Impact
0.00
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article

Exploring storylines on patient involvement in the Nordic welfare system: Insights from Danish academic literature

Anette Lykke Hindhede, Mikala Erlik, Helle Timm
Nordisk välfärdsforskning | Nordic Welfare Research
Mental Health and Patient Involvement
article

Exploring storylines on patient involvement in the Nordic welfare system: Insights from Danish academic literature

Anette Lykke Hindhede, Mikala Erlik, Helle Timm
article en

Abstract

Patient involvement (PI) has become a central focus within Nordic healthcare systems. However, the concept remains ambiguous and is interpreted differently across disciplines, which poses challenges for both research and practice. This study explores how PI is conceptualized in Danish academic literature published between 1990 and 2024. Using a scoping review and a meta-narrative approach, we identified three disciplinary storylines: Health Care; Organizational and Management; and Society. These storylines represent distinct yet overlapping logics concerning the roles of patients, professionals, and institutions, and operate at different analytical levels (micro, meso, and macro). By unpacking these narratives, the study contributes to a more nuanced understanding of the assumptions and tensions embedded in the concept of PI. Our findings underline the importance of engaging critically with the theoretical foundations of PI and suggest directions for future empirical research that can explore how these divergent logics play out in practice.

Nordisk välfärdsforskning | Nordic Welfare ResearchVol. 11(2)
University of Copenhagen (DK), University of Southern Denmark (DK), Copenhagen University Hospital (DK), Universitetshospitalernes Center for Sundhedsfaglig Forskning (DK)
Openalex Percentile: Top 20%
Mental Health and Patient Involvement
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