Psychosocial Impact of Childhood Cancer Survivorship: Experiences of Adolescent and Young Adult Survivors and Their Families

OBJECTIVE: To analyze the psychosocial impact of childhood cancer survivorship from the perspectives of survivors and their family members. METHODS: This qualitative interpretive study followed COREQ guidelines and used purposive sampling with a hybrid recruitment strategy to include adolescent and young adult survivors of childhood cancer and their family members in Brazil. Participants completed individual online, semistructured interviews. Interviews were audio-recorded, fully transcribed, and analyzed using reflexive thematic analysis supported by MAXQDA software. RESULTS: Thirty participants were included: 19 survivors (aged 14-28 years) and 11 parents. Four themes were identified: first, the persistent shadow of prejudice, shaping survivors' interactions and relationships; second, stigma in education and employment, with barriers to recruitment, job retention, and school performance linked to late effects and follow-up; third, social reintegration and feelings of inadequacy, marked by insecurity, isolation, and challenges in intimate relationships; and fourth, family support, overprotection, and judgments, where encouragement coexisted with restrictions to autonomy. Together, these subthemes formed a broader theme underscoring the psychosocial repercussions of survivorship. CONCLUSIONS: Survivorship after childhood cancer is not only a clinical trajectory but also a deeply social and familial phenomenon. Prejudice, stigma, and ambivalent family support continue to shape survivors' lives, limiting educational, occupational, and social opportunities. IMPLICATIONS FOR NURSING PRACTICE: Findings highlight the need for survivorship care addressing psychosocial well-being, with strengthened family support, and social and occupational reintegration are essential components of long-term follow-up, particularly in low- and middle-income countries where survivorship care remains limited.

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Publication Details

Journal
Seminars in Oncology Nursing
Published
2026-04-01
DOI
https://doi.org/10.1016/j.soncn.2026.152240
Primary Topic
Childhood Cancer Survivors' Quality of Life
Type
article
Field-Weighted Citation Impact
0.00

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article

Psychosocial Impact of Childhood Cancer Survivorship: Experiences of Adolescent and Young Adult Survivors and Their Families

Fernanda Machado Silva‐Rodrigues, Ana Carolina Andrade Biaggi Leite, Rhyquelle Rhibna Neris, Lucila Castanheira Nascimento et al.
Seminars in Oncology Nursing
Childhood Cancer Survivors' Quality of Life
article

Psychosocial Impact of Childhood Cancer Survivorship: Experiences of Adolescent and Young Adult Survivors and Their Families

Fernanda Machado Silva‐Rodrigues, Ana Carolina Andrade Biaggi Leite, Rhyquelle Rhibna Neris, Lucila Castanheira Nascimento, Cristina Garcia-Vivar
article en

Abstract

OBJECTIVE: To analyze the psychosocial impact of childhood cancer survivorship from the perspectives of survivors and their family members. METHODS: This qualitative interpretive study followed COREQ guidelines and used purposive sampling with a hybrid recruitment strategy to include adolescent and young adult survivors of childhood cancer and their family members in Brazil. Participants completed individual online, semistructured interviews. Interviews were audio-recorded, fully transcribed, and analyzed using reflexive thematic analysis supported by MAXQDA software. RESULTS: Thirty participants were included: 19 survivors (aged 14-28 years) and 11 parents. Four themes were identified: first, the persistent shadow of prejudice, shaping survivors' interactions and relationships; second, stigma in education and employment, with barriers to recruitment, job retention, and school performance linked to late effects and follow-up; third, social reintegration and feelings of inadequacy, marked by insecurity, isolation, and challenges in intimate relationships; and fourth, family support, overprotection, and judgments, where encouragement coexisted with restrictions to autonomy. Together, these subthemes formed a broader theme underscoring the psychosocial repercussions of survivorship. CONCLUSIONS: Survivorship after childhood cancer is not only a clinical trajectory but also a deeply social and familial phenomenon. Prejudice, stigma, and ambivalent family support continue to shape survivors' lives, limiting educational, occupational, and social opportunities. IMPLICATIONS FOR NURSING PRACTICE: Findings highlight the need for survivorship care addressing psychosocial well-being, with strengthened family support, and social and occupational reintegration are essential components of long-term follow-up, particularly in low- and middle-income countries where survivorship care remains limited.

Seminars in Oncology Nursing
Universidade Federal de Minas Gerais (BR), Universidade de Ribeirão Preto (BR), Universidade de São Paulo (BR), Navarre Institute of Health Research (ES)
Conselho Nacional de Desenvolvimento Científico e Tecnológico
Gender equality
Openalex Percentile: Top 16%
Childhood Cancer Survivors' Quality of Life
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