‘ <i>It's like calling short people vertically challenged’:</i> Language and terminology preferences among neurodivergent adults in the United Kingdom

Neurodivergent people (e.g., dyslexic people) do not always agree with the terms commonly used by others (e.g., professionals) to describe their neurodivergence. Our mixed methods study aimed to investigate terminology preferences for different categories of developmental neurodivergence (e.g., autism, dyspraxia) among people from those communities. Participants ( n = 902) completed an online survey, ranking the likeability and offensiveness of a range of person-first and identify-first terms for their diagnoses. We invited them to tell us reasons for their preferences via open text response, which we analysed using thematic analysis. Paired samples on identity vs. person first preferences showed identity first language was significantly more likeable, and significantly less offensive for most categories, but not all (stuttering and Tourette syndrome). For the thematic analysis, we developed two key themes, (1) ‘How they talk about us’, which focussed on the inadequacy of existing terminology, and the stigma associated with particular labels, and (2) ‘How we talk about us’, which focussed on viscerality of certain terms, agency to express personal preferences, debates around identity vs. person first terms, and identification with the concept of ‘disability’. Our findings have implications for how neurodivergent people are described, especially by those in professional services.

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Publication Details

Journal
Neurodiversity
Published
2026-04-01
DOI
https://doi.org/10.1177/27546330261428235
Primary Topic
Autism Spectrum Disorder Research
Type
article
Field-Weighted Citation Impact
0.00
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article

‘ It's like calling short people vertically challenged’: Language and terminology preferences among neurodivergent adults in the United Kingdom

Ann Memmott, Stephen J. Macdonald, Elliott Spaeth, Kathryn Williams et al.
Neurodiversity
Autism Spectrum Disorder Research
article

‘ It's like calling short people vertically challenged’: Language and terminology preferences among neurodivergent adults in the United Kingdom

Ann Memmott, Stephen J. Macdonald, Elliott Spaeth, Kathryn Williams, Gemma Williams, Amy Pearson, Jennifer Leigh, Aimee Grant, Kieran Rose
article en

Abstract

Neurodivergent people (e.g., dyslexic people) do not always agree with the terms commonly used by others (e.g., professionals) to describe their neurodivergence. Our mixed methods study aimed to investigate terminology preferences for different categories of developmental neurodivergence (e.g., autism, dyspraxia) among people from those communities. Participants ( n = 902) completed an online survey, ranking the likeability and offensiveness of a range of person-first and identify-first terms for their diagnoses. We invited them to tell us reasons for their preferences via open text response, which we analysed using thematic analysis. Paired samples on identity vs. person first preferences showed identity first language was significantly more likeable, and significantly less offensive for most categories, but not all (stuttering and Tourette syndrome). For the thematic analysis, we developed two key themes, (1) ‘How they talk about us’, which focussed on the inadequacy of existing terminology, and the stigma associated with particular labels, and (2) ‘How we talk about us’, which focussed on viscerality of certain terms, agency to express personal preferences, debates around identity vs. person first terms, and identification with the concept of ‘disability’. Our findings have implications for how neurodivergent people are described, especially by those in professional services.

NeurodiversityVol. 4
Durham University (GB), University of Kent (GB), Swansea University (GB), Advocate Health Care (US), Advance HE (GB), Diagnostics for the Real World (United Kingdom) (GB), PA Consulting Group (GB), Cardiff University (GB)
Quality Education
Openalex Percentile: Top 21%
Autism Spectrum Disorder Research
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