Homecare workers’ experiences of providing transpersonal palliative care: A qualitative, arts‑based explorative study

The global population is rapidly aging, increasing the demand for palliative home care, which is largely provided by homecare workers, operating with minimal resources and significant personal involvement. Task-oriented caring limit opportunities for ethical, holistic, and sustainable care. We explored how homecare workers experience transpersonal palliative care and how they perceive its depth, intensity, and complexity. Using an arts‑based qualitative design that combined painting and storytelling, we gathered narratives from 14 homecare workers in Sweden during the spring of 2025. We analyzed the data using Reflexive Thematic Analysis, complemented by critical visual methodology. We constructed one overarching theme, Continuous Flow of Embodied Compassion, and three interrelated subthemes describing Emotional Navigation, Existential Depth, and Shifting Identities. While homecare workers strove to provide holistic palliative care, limited self‑care opportunities and insufficient institutional support challenged the full realization of transpersonal caring in everyday practice.

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Publication Details

Journal
Death Studies
Published
2026-04-11
DOI
https://doi.org/10.1080/07481187.2026.2649289
Primary Topic
Palliative Care and End-of-Life Issues
Type
article
Field-Weighted Citation Impact
0.00
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article

Homecare workers’ experiences of providing transpersonal palliative care: A qualitative, arts‑based explorative study

Lisbeth Kristiansen, Ulla Näppä, Laura Tolboom
Death Studies
Palliative Care and End-of-Life Issues
article

Homecare workers’ experiences of providing transpersonal palliative care: A qualitative, arts‑based explorative study

Lisbeth Kristiansen, Ulla Näppä, Laura Tolboom
article en

Abstract

The global population is rapidly aging, increasing the demand for palliative home care, which is largely provided by homecare workers, operating with minimal resources and significant personal involvement. Task-oriented caring limit opportunities for ethical, holistic, and sustainable care. We explored how homecare workers experience transpersonal palliative care and how they perceive its depth, intensity, and complexity. Using an arts‑based qualitative design that combined painting and storytelling, we gathered narratives from 14 homecare workers in Sweden during the spring of 2025. We analyzed the data using Reflexive Thematic Analysis, complemented by critical visual methodology. We constructed one overarching theme, Continuous Flow of Embodied Compassion, and three interrelated subthemes describing Emotional Navigation, Existential Depth, and Shifting Identities. While homecare workers strove to provide holistic palliative care, limited self‑care opportunities and insufficient institutional support challenged the full realization of transpersonal caring in everyday practice.

Death Studies
Mid Sweden University (SE)
Decent work and economic growth
Openalex Percentile: Top 17%
Palliative Care and End-of-Life Issues
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Homecare workers’ experiences of providing transpersonal palliative care: A qualitative, arts‑based explorative study — Lisbeth Kristiansen, Ulla Näppä, et al. · Death Studies (2026) | TGRS Research Map | TGRS