“I wasn't broken”: Addressing stigma associated with dementia while Walking the Talk for Dementia
INTRODUCTION: Walking the Talk for Dementia (WTD) convenes people from every continent and multiple perspectives, including people with lived experience, in a 40-km walk followed by a 2-day symposium. The aim is collective reflective dialogue about dementia stigma without the burden of professional hierarchies. METHODS: Qualitative reflections during and immediately following the walk were analyzed using content analysis to identify common themes. RESULTS: Three themes demonstrate an evolution of perspectives about dementia and stigma: "meeting the person not the label", "a community in solidarity", and "I wasn't treated like I was broken, and I wasn't broken." DISCUSSION: WTD created an environment where people felt safe to recognize and express their unconscious biases. Participants observed that limiting beliefs about people with dementia were universal, regardless of context. These experiences involved deep self-learning. Participants left the event with a deeper understanding of dementia-related stigma and its impacts.
Authors
- Sherril B. Gelmon (ORCID: https://orcid.org/0000-0002-5143-535X)
- Walter D Dawson (ORCID: https://orcid.org/0000-0002-1172-0471)
- Kate Irving (ORCID: https://orcid.org/0000-0002-9255-4574)
- Lingani Mbakile‐Mahlanza (ORCID: https://orcid.org/0000-0002-1285-3276)
- Fernando Aguzzoli Peres
- Jonathan Adrián Zegarra‐Valdivia
Institutions
- Portland State University (US)
- University of Botswana (BW)
- Oregon Health & Science University (US)
- University of California, San Francisco (US)
- Trinity College Dublin (IE)
- Universidad Científica del Sur (PE)
- Achucarro Basque Center for Neuroscience (ES)
- Dementia UK (GB)
- Global Brain Health Institute (US)
- Dublin City University (IE)
Publication Details
- Journal
- Alzheimer s & Dementia Diagnosis Assessment & Disease Monitoring
- Published
- 2026-04-01
- DOI
- https://doi.org/10.1002/dad2.70331
- Primary Topic
- Dementia and Cognitive Impairment Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00