“I wasn't broken”: Addressing stigma associated with dementia while Walking the Talk for Dementia

INTRODUCTION: Walking the Talk for Dementia (WTD) convenes people from every continent and multiple perspectives, including people with lived experience, in a 40-km walk followed by a 2-day symposium. The aim is collective reflective dialogue about dementia stigma without the burden of professional hierarchies. METHODS: Qualitative reflections during and immediately following the walk were analyzed using content analysis to identify common themes. RESULTS: Three themes demonstrate an evolution of perspectives about dementia and stigma: "meeting the person not the label", "a community in solidarity", and "I wasn't treated like I was broken, and I wasn't broken." DISCUSSION: WTD created an environment where people felt safe to recognize and express their unconscious biases. Participants observed that limiting beliefs about people with dementia were universal, regardless of context. These experiences involved deep self-learning. Participants left the event with a deeper understanding of dementia-related stigma and its impacts.

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Publication Details

Journal
Alzheimer s & Dementia Diagnosis Assessment & Disease Monitoring
Published
2026-04-01
DOI
https://doi.org/10.1002/dad2.70331
Primary Topic
Dementia and Cognitive Impairment Research
Type
article
Field-Weighted Citation Impact
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article

“I wasn't broken”: Addressing stigma associated with dementia while Walking the Talk for Dementia

Sherril B. Gelmon, Walter D Dawson, Kate Irving, Lingani Mbakile‐Mahlanza et al.
Alzheimer s & Dementia Diagnosis Assessment & Disease Monitoring
Dementia and Cognitive Impairment Research
article

“I wasn't broken”: Addressing stigma associated with dementia while Walking the Talk for Dementia

Sherril B. Gelmon, Walter D Dawson, Kate Irving, Lingani Mbakile‐Mahlanza, Fernando Aguzzoli Peres, Jonathan Adrián Zegarra‐Valdivia
article en

Abstract

INTRODUCTION: Walking the Talk for Dementia (WTD) convenes people from every continent and multiple perspectives, including people with lived experience, in a 40-km walk followed by a 2-day symposium. The aim is collective reflective dialogue about dementia stigma without the burden of professional hierarchies. METHODS: Qualitative reflections during and immediately following the walk were analyzed using content analysis to identify common themes. RESULTS: Three themes demonstrate an evolution of perspectives about dementia and stigma: "meeting the person not the label", "a community in solidarity", and "I wasn't treated like I was broken, and I wasn't broken." DISCUSSION: WTD created an environment where people felt safe to recognize and express their unconscious biases. Participants observed that limiting beliefs about people with dementia were universal, regardless of context. These experiences involved deep self-learning. Participants left the event with a deeper understanding of dementia-related stigma and its impacts.

Alzheimer s & Dementia Diagnosis Assessment & Disease MonitoringVol. 18(2)
Portland State University (US), University of Botswana (BW), Oregon Health & Science University (US), University of California, San Francisco (US), Trinity College Dublin (IE), Universidad Científica del Sur (PE), Achucarro Basque Center for Neuroscience (ES), Dementia UK (GB), Global Brain Health Institute (US), Dublin City University (IE)
Reduced inequalities
Openalex Percentile: Top 18%
Dementia and Cognitive Impairment Research
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