Remote Symptom Assessment in Ambulatory Palliative Care: User-Centered Development of an mHealth App
BACKGROUND: Ambulatory palliative care (PC) focuses on managing complex symptoms, yet assessment relies on recall during infrequent visits to manage daily fluctuating symptoms. We aimed to design a PC-anchored remote symptom assessment (RSA) tool with patients and clinicians. METHODS: = 14) from an ambulatory PC clinic participated in staged prototype development and testing through focus groups and interviews. RESULTS: EMA-PAL features patient- and provider-facing interfaces that visualize daily Edmonton Symptom Assessment System (ESAS) scores, highlight severe symptoms, and support shared review during visits. Participants endorsed EMA-PAL's potential to enhance communication and workflow efficiency and identified priorities for future development (medication tracking and workflow integration). CONCLUSION: This exploratory pilot suggests that PC-anchored RSA tools such as EMA-PAL may help address gaps in symptom assessment and timelier and patient-centered symptom management in ambulatory PC.
Authors
- Samprit Banerjee (ORCID: https://orcid.org/0000-0001-6936-0846)
- Craig D. Blinderman (ORCID: https://orcid.org/0000-0002-8905-0666)
- Daniel Shalev (ORCID: https://orcid.org/0000-0002-8168-2255)
- Irina Mindlis (ORCID: https://orcid.org/0000-0002-4686-1397)
- Emily Bivona-Maldonado
- Zilong Yu
- Maureen Ekwebelem
- M. Carrington Reid
Institutions
- Memorial Sloan Kettering Cancer Center (US)
- Cornell University (US)
- Johnson University (US)
- Weill Cornell Medicine (US)
Publication Details
- Journal
- Journal of Palliative Medicine
- Published
- 2026-04-10
- DOI
- https://doi.org/10.1177/10966218261441208
- Primary Topic
- Cancer survivorship and care
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- National Institute on Aging
- Clinical and Translational Science Center, Weill Cornell Medical College