Impact of Early‐Onset IBS on Schooling, Illness in Adulthood, and Career Prospects

INTRODUCTION: Irritable bowel syndrome (IBS) is a disorder of gut-brain interaction that significantly affects patients' quality of life, particularly in educational and professional settings. This study aimed to assess the impact of IBS on schooling, higher education, and future professional life. METHODS: An online survey was conducted among members of a French patient association and visitors to its website. Adult participants provided demographic data, details on disease severity, and feedback on their educational and professional experiences. RESULTS: Among 365 participants with IBS, 42% reported having IBS during their schooling or higher education. The most commonly reported difficulties included restricted access to toilets during class (40%), problems with school-provided meals (39%), and lack of privacy in restrooms (50%). Additionally, 62% of the participants reported that IBS had a direct negative impact on their academic performance, leading to frequent late arrivals at class (59%), absenteeism (70%), and repeating a year (23%). Irritable bowel syndrome was rarely addressed in academic settings (27%), though 52% of adaptation requests were granted. Finally, IBS was associated with lower income levels and reduced career prospects compared with individuals without IBS during their education (p < 0.005). CONCLUSION: Irritable bowel syndrome has a significant impact on schooling and career development. Greater awareness and recognition of this condition in educational and professional environments are necessary to improve affected individuals' quality of life and professional integration.

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Publication Details

Journal
Neurogastroenterology & Motility
Published
2026-04-01
DOI
https://doi.org/10.1111/nmo.70308
Primary Topic
Gastrointestinal motility and disorders
Type
article
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article

Impact of Early‐Onset IBS on Schooling, Illness in Adulthood, and Career Prospects

Gilles Macaigne, Fabien Wuestenberghs, Frank Zerbib, Pauline Jouët et al.
Neurogastroenterology & Motility
Gastrointestinal motility and disorders
article

Impact of Early‐Onset IBS on Schooling, Illness in Adulthood, and Career Prospects

Gilles Macaigne, Fabien Wuestenberghs, Frank Zerbib, Pauline Jouët, Michel Dapoigny, F. Iglicki, Jean‐Marc Sabaté, Chloé Melchior, Alexandre Entremont, Alexis Mosca, J.-J. Raynaud, François Mion, Thierry Piche, Patricia Renoul, Suzelle Facon
article en

Abstract

INTRODUCTION: Irritable bowel syndrome (IBS) is a disorder of gut-brain interaction that significantly affects patients' quality of life, particularly in educational and professional settings. This study aimed to assess the impact of IBS on schooling, higher education, and future professional life. METHODS: An online survey was conducted among members of a French patient association and visitors to its website. Adult participants provided demographic data, details on disease severity, and feedback on their educational and professional experiences. RESULTS: Among 365 participants with IBS, 42% reported having IBS during their schooling or higher education. The most commonly reported difficulties included restricted access to toilets during class (40%), problems with school-provided meals (39%), and lack of privacy in restrooms (50%). Additionally, 62% of the participants reported that IBS had a direct negative impact on their academic performance, leading to frequent late arrivals at class (59%), absenteeism (70%), and repeating a year (23%). Irritable bowel syndrome was rarely addressed in academic settings (27%), though 52% of adaptation requests were granted. Finally, IBS was associated with lower income levels and reduced career prospects compared with individuals without IBS during their education (p < 0.005). CONCLUSION: Irritable bowel syndrome has a significant impact on schooling and career development. Greater awareness and recognition of this condition in educational and professional environments are necessary to improve affected individuals' quality of life and professional integration.

Neurogastroenterology & MotilityVol. 38(4)
Université Claude Bernard Lyon 1 (FR), Université de Bordeaux (FR), Inserm (FR), Université Clermont Auvergne (FR), Centre Hospitalier Universitaire de Bordeaux (FR), Université Sorbonne Paris Nord (FR), Assistance Publique – Hôpitaux de Paris (FR), Hospices Civils de Lyon (FR), Normandie Université (FR), Hôpital l'Archet (FR), Hôpital Cardiologique du Haut-Lévêque (FR), Hôpital Robert-Debré (FR), Hôpital Avicenne (FR), Instituto de Gastroenterología (CU), Primary Health Care (QA), Institute for Research and Innovation in Biomedicine (FR), Groupe Hospitalier Intercommunal Le Raincy Montfermeil (FR), Université de Rouen Normandie (FR)
Openalex Percentile: Top 46%
Gastrointestinal motility and disorders
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