David Wasserman and Supported Decision-Making in Research

special issue on supported decision-making in research by honoring David T. Wasserman (1953-2025), a major organizer of the NIH workshop from which the issue emerged and a coauthor of two papers in the volume. It situates supported decision-making in research as an emerging approach that aims to make participation by people with cognitive disabilities possible without displacing their agency through default reliance on legally authorized representatives. The essay highlights Wasserman's distinctive contribution to this developing area. He sought a position that is respectful while remaining clear eyed about exploitation risks and about well-intentioned practices that can undermine a participant's interests, especially in hard cases where meaningful authorization is fragile. Drawing on the two coauthored papers in the issue and on colleagues' recollections, the essay emphasizes Wasserman's commitment to conceptual clarity, workable institutional design, and mentorship through collaboration. It closes by reflecting on his intellectual virtues, humor, and lasting influence on disability bioethics and research ethics.

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Publication Details

Journal
The Journal of Law Medicine & Ethics
Published
2026-04-06
DOI
https://doi.org/10.1017/jme.2026.10257
Primary Topic
Disability Rights and Representation
Type
article
Field-Weighted Citation Impact
0.00
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David Wasserman and Supported Decision-Making in Research

Adam Cureton
The Journal of Law Medicine & Ethics
Disability Rights and Representation
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David Wasserman and Supported Decision-Making in Research

Adam Cureton
article en

Abstract

special issue on supported decision-making in research by honoring David T. Wasserman (1953-2025), a major organizer of the NIH workshop from which the issue emerged and a coauthor of two papers in the volume. It situates supported decision-making in research as an emerging approach that aims to make participation by people with cognitive disabilities possible without displacing their agency through default reliance on legally authorized representatives. The essay highlights Wasserman's distinctive contribution to this developing area. He sought a position that is respectful while remaining clear eyed about exploitation risks and about well-intentioned practices that can undermine a participant's interests, especially in hard cases where meaningful authorization is fragile. Drawing on the two coauthored papers in the issue and on colleagues' recollections, the essay emphasizes Wasserman's commitment to conceptual clarity, workable institutional design, and mentorship through collaboration. It closes by reflecting on his intellectual virtues, humor, and lasting influence on disability bioethics and research ethics.

The Journal of Law Medicine & Ethics
University of Tennessee at Knoxville (US)
Peace, Justice and strong institutions
Openalex Percentile: Top 24%
Disability Rights and Representation
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