Caregiver-perceived behavioral challenges in fragile X syndrome and implications for measuring treatment benefit in clinical trials

Authors

Terri Sebree
George G. Nomikos (ORCID: https://orcid.org/0000-0003-2846-1426)
Kristen G Bzdek
Stephen O’Quinn (ORCID: https://orcid.org/0000-0002-1535-1191)
Elizabeth Merikle (ORCID: https://orcid.org/0000-0002-3310-1196)
Nancy Tich
Randi J. Hagerman

Institutions

ECRI Institute (US)
Harmonic Drive (Germany) (DE)
Enhanced Systems Consulting (United States) (US)
University of California Davis Medical Center (US)
Wake Forest University (US)
University of California, Davis (US)

Publication Details

Journal: Journal of Patient-Reported Outcomes
Published: 2026-04-01
DOI: https://doi.org/10.1186/s41687-026-01054-9
Primary Topic: Genetics and Neurodevelopmental Disorders
Type: article
Field-Weighted Citation Impact: 0.00

Funders

Harmony Biosciences

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article

Caregiver-perceived behavioral challenges in fragile X syndrome and implications for measuring treatment benefit in clinical trials

Terri Sebree, George G. Nomikos, Kristen G Bzdek, Stephen O’Quinn et al.

Apr 1, 2026

Journal of Patient-Reported Outcomes

Genetics and Neurodevelopmental Disorders

article

Caregiver-perceived behavioral challenges in fragile X syndrome and implications for measuring treatment benefit in clinical trials

Terri Sebree, George G. Nomikos, Kristen G Bzdek, Stephen O’Quinn, Elizabeth Merikle, Nancy Tich, Randi J. Hagerman

April 1, 2026article en

Abstract

No abstract available for this paper.

Journal of Patient-Reported Outcomes

ECRI Institute (US), Harmonic Drive (Germany) (DE), Enhanced Systems Consulting (United States) (US), University of California Davis Medical Center (US), Wake Forest University (US), University of California, Davis (US)

Harmony Biosciences

Openalex Percentile: Top 31%

Genetics and Neurodevelopmental Disorders

DOI Open Access PDF OpenAlex

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