The economic burden of amyotrophic lateral sclerosis for patients and families: a survey on out-of-pocket expenses and income loss in France

Authors

Anne Duburcq (ORCID: https://orcid.org/0009-0003-4344-9393)
Camille Nevoret (ORCID: https://orcid.org/0000-0002-5485-1535)
Sandrine Baffert (ORCID: https://orcid.org/0000-0003-0661-9253)
Thelma ARCELIN
Sabine Turgeman
Philippe Corcia
Claude Desnuelle
Philippe Couratier

Institutions

Cemka-Eval (France) (FR)
Centre Hospitalier Universitaire de Tours (FR)
Centre Hospitalier Universitaire de Limoges (FR)
Association pour la recherche sur la Sclérose Latérale Amyotrophique (FR)

Publication Details

Journal: Orphanet Journal of Rare Diseases
Published: 2026-03-31
DOI: https://doi.org/10.1186/s13023-026-04326-1
Primary Topic: Amyotrophic Lateral Sclerosis Research
Type: article
Field-Weighted Citation Impact: 0.00

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article

The economic burden of amyotrophic lateral sclerosis for patients and families: a survey on out-of-pocket expenses and income loss in France

Anne Duburcq, Camille Nevoret, Sandrine Baffert, Thelma ARCELIN et al.

Mar 31, 2026

Orphanet Journal of Rare Diseases

Amyotrophic Lateral Sclerosis Research

article

The economic burden of amyotrophic lateral sclerosis for patients and families: a survey on out-of-pocket expenses and income loss in France

Anne Duburcq, Camille Nevoret, Sandrine Baffert, Thelma ARCELIN, Sabine Turgeman, Philippe Corcia, Claude Desnuelle, Philippe Couratier

March 31, 2026article en

Abstract

No abstract available for this paper.

Orphanet Journal of Rare Diseases

Cemka-Eval (France) (FR), Centre Hospitalier Universitaire de Tours (FR), Centre Hospitalier Universitaire de Limoges (FR), Association pour la recherche sur la Sclérose Latérale Amyotrophique (FR)

No poverty

Openalex Percentile: Top 6%

Amyotrophic Lateral Sclerosis Research

DOI Open Access PDF OpenAlex

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