PFAS Contamination and the Impacts of Environmental Turbulence: The Role of Collective Memory and Narrative Epidemiology in Invisible Disaster

PFAS contamination represents a slow, invisible chronic technological disaster with documented long-term psychosocial impacts on affected communities. However, existing research has predominantly focused on toxicological and biomedical outcomes, leaving the lived experiences and narrative dimensions of contamination underexplored. This study investigates how residents of PFAS-contaminated communities experience and narrate environmental contamination by applying Edelstein's Theory of Environmental Turbulence (TET) and integrating a bottom-up stage-based model of psychosocial reaction with narrative epidemiology. Twenty-five personal narratives were selected from the digital archive Living With PFAS and analyzed through thematic analysis. Three main themes emerged, corresponding to the TET dimensions of lifescape, lifestyle, and lifestrain, articulated across twelve subthemes: inversion of health, self, home community and place, environment, livelihood, trust, environmental stigma, shock and fear, chronic concern, anger, parental guilt and relation strain. The findings demonstrate that PFAS contamination produces multidimensional disruptions that extend beyond toxic exposure to encompass identity, social relationships, institutional trust, and collective memory. Integrating TET with Psycho-Social Impact Assessment (PSIA) offers a theoretically grounded and exploratory transdisciplinary framework for identifying hidden suffering and informing more responsive environmental health policies and community interventions.

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Journal
International Journal of Environmental Research and Public Health
Published
2026-03-31
DOI
https://doi.org/10.3390/ijerph23040448
Primary Topic
Environmental Justice and Health Disparities
Type
article
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article

PFAS Contamination and the Impacts of Environmental Turbulence: The Role of Collective Memory and Narrative Epidemiology in Invisible Disaster

Marialuisa Menegatto, Adriano Zamperini, Danielle DeVasto, Michael R. Edelstein
International Journal of Environmental Research and Public Health
Environmental Justice and Health Disparities
article

PFAS Contamination and the Impacts of Environmental Turbulence: The Role of Collective Memory and Narrative Epidemiology in Invisible Disaster

Marialuisa Menegatto, Adriano Zamperini, Danielle DeVasto, Michael R. Edelstein
article en

Abstract

PFAS contamination represents a slow, invisible chronic technological disaster with documented long-term psychosocial impacts on affected communities. However, existing research has predominantly focused on toxicological and biomedical outcomes, leaving the lived experiences and narrative dimensions of contamination underexplored. This study investigates how residents of PFAS-contaminated communities experience and narrate environmental contamination by applying Edelstein's Theory of Environmental Turbulence (TET) and integrating a bottom-up stage-based model of psychosocial reaction with narrative epidemiology. Twenty-five personal narratives were selected from the digital archive Living With PFAS and analyzed through thematic analysis. Three main themes emerged, corresponding to the TET dimensions of lifescape, lifestyle, and lifestrain, articulated across twelve subthemes: inversion of health, self, home community and place, environment, livelihood, trust, environmental stigma, shock and fear, chronic concern, anger, parental guilt and relation strain. The findings demonstrate that PFAS contamination produces multidimensional disruptions that extend beyond toxic exposure to encompass identity, social relationships, institutional trust, and collective memory. Integrating TET with Psycho-Social Impact Assessment (PSIA) offers a theoretically grounded and exploratory transdisciplinary framework for identifying hidden suffering and informing more responsive environmental health policies and community interventions.

International Journal of Environmental Research and Public HealthVol. 23(4)
University of Padua (IT), Ramapo College (US), Centro Interuniversitario di Ricerca Per lo Sviluppo sostenibile (IT), Grand Valley State University (US)
Openalex Percentile: Top 39%
Environmental Justice and Health Disparities
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