Identifying strategies to characterize the diversity of the MS population in Canada: a nominal group study
Background: Diversity of the multiple sclerosis (MS) population in Canada is unknown, yet demographic and diversity-related characteristics influence health outcomes. Objective: To determine "What strategy would best address the information gaps regarding diversity of the MS population in Canada?" Methods: The virtual nominal group technique involved silent idea generation, recording and discussion of items, preliminary voting, discussion and final ranking. Results: Eight participants proposed 10 strategies; two were dropped before final voting, after which the top options (tied) were: a national standardized clinic form, novel applications of administrative data, and novel data linkages. Conclusion: We identified strategies to characterize the diversity of the MS population in Canada.
Authors
- Afolasade Fakolade (ORCID: https://orcid.org/0000-0003-3405-5782)
- Helen Tremlett (ORCID: https://orcid.org/0000-0001-5804-2535)
- Dalia Rotstein (ORCID: https://orcid.org/0000-0002-7280-3684)
- Ruth Ann Marrie
- Marcia Finlayson
- Colleen J. Maxwell
- E. Ann Yeh
Institutions
- Dalhousie University (CA)
- University of Waterloo (CA)
- University of Toronto (CA)
- Queen's University (CA)
- Great Ormond Street Hospital (GB)
- Hospital for Sick Children (CA)
- McGill University Health Centre (CA)
- Nova Scotia Health Authority (CA)
- SickKids Foundation (CA)
- University College London (GB)
Publication Details
- Journal
- Frontiers in Neurology
- Published
- 2026-03-31
- DOI
- https://doi.org/10.3389/fneur.2026.1757659
- Primary Topic
- Multiple Sclerosis Research Studies
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- European Genomic Institute for Diabetes