The experiences of being a young carer to a parent with Huntington’s disease: a thematic synthesis

The experiences of young carers to a parent with HD share some similarities with other young carers to a parent with chronic illness. However, a key difference is the constant reminder of their possibility of inheriting the HD gene and the effects of this on their lives. This makes it difficult for them to envision a future beyond being a young carer.

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Publication Details

Journal
Disability and Rehabilitation
Published
2026-03-29
DOI
https://doi.org/10.1080/09638288.2026.2651683
Primary Topic
Family Support in Illness
Type
article
Field-Weighted Citation Impact
0.00
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article

The experiences of being a young carer to a parent with Huntington’s disease: a thematic synthesis

Jane Simpson, Fiona Eccles, Lewis Pares, Maria Dale
Disability and Rehabilitation
Family Support in Illness
article

The experiences of being a young carer to a parent with Huntington’s disease: a thematic synthesis

Jane Simpson, Fiona Eccles, Lewis Pares, Maria Dale
article en

Abstract

The experiences of young carers to a parent with HD share some similarities with other young carers to a parent with chronic illness. However, a key difference is the constant reminder of their possibility of inheriting the HD gene and the effects of this on their lives. This makes it difficult for them to envision a future beyond being a young carer.

Disability and Rehabilitation
Leicestershire Partnership NHS Trust (GB), Lancaster University (GB)
Openalex Percentile: Top 3%
Family Support in Illness
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