The experiences of being a young carer to a parent with Huntington’s disease: a thematic synthesis
The experiences of young carers to a parent with HD share some similarities with other young carers to a parent with chronic illness. However, a key difference is the constant reminder of their possibility of inheriting the HD gene and the effects of this on their lives. This makes it difficult for them to envision a future beyond being a young carer.
Authors
- Jane Simpson (ORCID: https://orcid.org/0000-0001-5071-4077)
- Fiona Eccles
- Lewis Pares
- Maria Dale
Institutions
- Leicestershire Partnership NHS Trust (GB)
- Lancaster University (GB)
Publication Details
- Journal
- Disability and Rehabilitation
- Published
- 2026-03-29
- DOI
- https://doi.org/10.1080/09638288.2026.2651683
- Primary Topic
- Family Support in Illness
- Type
- article
- Field-Weighted Citation Impact
- 0.00