The Economic Burden of Duchenne Muscular Dystrophy: A Systematic Review

DMD is associated with a substantial economic burden related to the formal disease management, as well as extensive informal care and indirect (productivity) costs shouldered by parents and other nonprofessional caregivers. Although relatively well-captured for a few countries, comprehensive cost data are lacking for many geographical settings. Our portfolio of costs of DMD will help inform assessments of burden of illness, health technology evaluations of new therapies, and data gap analyses for future research.

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Publication Details

Journal
PharmacoEconomics
Published
2026-03-28
DOI
https://doi.org/10.1007/s40273-026-01610-7
Primary Topic
Musicians’ Health and Performance
Type
article
Field-Weighted Citation Impact
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article

The Economic Burden of Duchenne Muscular Dystrophy: A Systematic Review

Erik Landfeldt, Alfred Peter Born, Valerie Deroo, Luca Bello et al.
PharmacoEconomics
Musicians’ Health and Performance
article

The Economic Burden of Duchenne Muscular Dystrophy: A Systematic Review

Erik Landfeldt, Alfred Peter Born, Valerie Deroo, Luca Bello, Anne-Berit Ekström, Silene Giusti, Maria Åberg
article en

Abstract

DMD is associated with a substantial economic burden related to the formal disease management, as well as extensive informal care and indirect (productivity) costs shouldered by parents and other nonprofessional caregivers. Although relatively well-captured for a few countries, comprehensive cost data are lacking for many geographical settings. Our portfolio of costs of DMD will help inform assessments of burden of illness, health technology evaluations of new therapies, and data gap analyses for future research.

PharmacoEconomics
University of Padua (IT), Sahlgrenska University Hospital (SE), Copenhagen University Hospital (DK), Rigshospitalet (DK), IQVIA (United Kingdom) (GB), IQVIA (United States) (US), Kungälvs Sjukhus (SE), IQ Samhällsbyggnad (SE), Italfarmaco (Italy) (IT), University of Gothenburg (SE), Umeå University (SE)
Openalex Percentile: Top 4%
Musicians’ Health and Performance
DOIOpen Access PDFOpenAlex
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