A Federal Policy and Legal Framework to Help Address Health Disparities Experienced by People with Intellectual and Other Cognitive Disabilities: Clinical Research and Supported Decision-Making

People with intellectual and other cognitive disabilities often face barriers to participating in clinical research, particularly related to the informed consent process. Recent federal policy and legal efforts have advanced strategies to address these challenges, including using supported decision-making. This article discusses this recent progress and the risks and potential opportunities to continuing it in a shifting federal landscape.

Authors

Institutions

Publication Details

Journal
The Journal of Law Medicine & Ethics
Published
2026-03-27
DOI
https://doi.org/10.1017/jme.2025.10201
Primary Topic
Healthcare Decision-Making and Restraints
Type
article
Field-Weighted Citation Impact
0.00
Controls
|||
ALL TIME
JAN
FEB
MAR
APR
MAY
JUN
JUL
AUG
SEP
OCT
article

A Federal Policy and Legal Framework to Help Address Health Disparities Experienced by People with Intellectual and Other Cognitive Disabilities: Clinical Research and Supported Decision-Making

Alison Barkoff
The Journal of Law Medicine & Ethics
Healthcare Decision-Making and Restraints
article

A Federal Policy and Legal Framework to Help Address Health Disparities Experienced by People with Intellectual and Other Cognitive Disabilities: Clinical Research and Supported Decision-Making

Alison Barkoff
article en

Abstract

People with intellectual and other cognitive disabilities often face barriers to participating in clinical research, particularly related to the informed consent process. Recent federal policy and legal efforts have advanced strategies to address these challenges, including using supported decision-making. This article discusses this recent progress and the risks and potential opportunities to continuing it in a shifting federal landscape.

The Journal of Law Medicine & Ethics
George Washington University (US)
Peace, Justice and strong institutions
Openalex Percentile: Top 9%
Healthcare Decision-Making and Restraints
AI Navigator

Ask Laika to Summarize, Analyze, and Connect papers live on the map.

Summarize Papers & Methodologies

Extract key findings, datasets, and comparative methods across publications.

Benchmark Rankings & Visual Analytics

Rank top research institutions, authors, funders, topics, and journals by Field-Weighted Citation Impact (FWCI) and paper volume with instant charts.

Connect Distant Disciplines

Bridge topological clusters on the map to find hidden collaborative intersections.