Quality of Life in Adults With Intellectual Disability: Observation‐Measurement Findings and Social Validity Among Direct Service Providers

ABSTRACT The quality of life (QoL) of persons with intellectual disability should be a fundamental concern for behavior analysis practitioners. In this pilot study, we designed an observation‐measurement form for direct service providers (DSPs) to record QoL indicators at two residential homes operated by a human services organization. The observation‐measurement form had good interobserver agreement, yielded many positive ratings of 12 QoL indicators, and suggested several areas of QoL that could be improved. Also, the DSPs completed a social validity questionnaire that revealed desirable impressions of QoL among adults living in the homes. Though preliminary, the study suggests a methodology for measuring QoL objectively at behavior analysis service organizations and monitoring QoL systematically by practitioners who support persons with intellectual disability.

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Publication Details

Journal
Behavioral Interventions
Published
2026-03-27
DOI
https://doi.org/10.1002/bin.70084
Primary Topic
Down syndrome and intellectual disability research
Type
article
Field-Weighted Citation Impact
0.00
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article

Quality of Life in Adults With Intellectual Disability: Observation‐Measurement Findings and Social Validity Among Direct Service Providers

James K. Luiselli, Amanda L. Duffy, Frank L. Bird, Matt Dye et al.
Behavioral Interventions
Down syndrome and intellectual disability research
article

Quality of Life in Adults With Intellectual Disability: Observation‐Measurement Findings and Social Validity Among Direct Service Providers

James K. Luiselli, Amanda L. Duffy, Frank L. Bird, Matt Dye, Mary Jane Weiss, Jill M. Harper
article en

Abstract

ABSTRACT The quality of life (QoL) of persons with intellectual disability should be a fundamental concern for behavior analysis practitioners. In this pilot study, we designed an observation‐measurement form for direct service providers (DSPs) to record QoL indicators at two residential homes operated by a human services organization. The observation‐measurement form had good interobserver agreement, yielded many positive ratings of 12 QoL indicators, and suggested several areas of QoL that could be improved. Also, the DSPs completed a social validity questionnaire that revealed desirable impressions of QoL among adults living in the homes. Though preliminary, the study suggests a methodology for measuring QoL objectively at behavior analysis service organizations and monitoring QoL systematically by practitioners who support persons with intellectual disability.

Behavioral InterventionsVol. 41(2)
Andover Eye Associates (US), MelroseWakefield Healthcare (US)
Openalex Percentile: Top 8%
Down syndrome and intellectual disability research
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