Transforming Care in Cystic Fibrosis: The Long‐Term Impact of Quality Improvement Projects on Clinical Outcomes

To our knowledge, this is the first report of a cohort of Turkish pwCF summarizing 5-year longitudinal registry data with survival estimates. These findings suggest that sustained, center-wide QI efforts may help maintain or improve clinical outcomes, particularly in settings with limited access to CFTR modulators.

Authors

Burcu Uzunoğlu (ORCID: https://orcid.org/0009-0004-3994-4399)
Damla Kocaman
B. Karadag
S. Karabulut
F. Karakoc
C. Yılmaz Yeğit
M. Selcuk Balcı
Y. Gokdemir
N. Metin Cakar
A. P. Ergenekon
S. Z. Nasr
E. Erdem Eralp
G. Tastan
M. Yuksel Kalyoncu
C. A. Yıldız

Institutions

University of Michigan (US)
Marmara University (TR)

Publication Details

Journal: Pediatric Pulmonology
Published: 2026-03-26
DOI: https://doi.org/10.1002/ppul.71597
Primary Topic: Cystic Fibrosis Research Advances
Type: article
Field-Weighted Citation Impact: 0.00

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article

Transforming Care in Cystic Fibrosis: The Long‐Term Impact of Quality Improvement Projects on Clinical Outcomes

Burcu Uzunoğlu, Damla Kocaman, B. Karadag, S. Karabulut et al.

Mar 26, 2026

Pediatric Pulmonology

Cystic Fibrosis Research Advances

article

Transforming Care in Cystic Fibrosis: The Long‐Term Impact of Quality Improvement Projects on Clinical Outcomes

Burcu Uzunoğlu, Damla Kocaman, B. Karadag, S. Karabulut, F. Karakoc, C. Yılmaz Yeğit, M. Selcuk Balcı, Y. Gokdemir, N. Metin Cakar, A. P. Ergenekon, S. Z. Nasr, E. Erdem Eralp, G. Tastan, M. Yuksel Kalyoncu, C. A. Yıldız

March 26, 2026article en

Abstract

To our knowledge, this is the first report of a cohort of Turkish pwCF summarizing 5-year longitudinal registry data with survival estimates. These findings suggest that sustained, center-wide QI efforts may help maintain or improve clinical outcomes, particularly in settings with limited access to CFTR modulators.

Pediatric PulmonologyVol. 61(4)

University of Michigan (US), Marmara University (TR)

Industry, innovation and infrastructure

Openalex Percentile: Top 5%

Cystic Fibrosis Research Advances

DOI Open Access PDF OpenAlex

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