Disease Burden in Transfusion-Dependent β-Thalassemia (TDT) Patients and Caregivers in Italy: Results of a Cross-Sectional Descriptive Online Survey
TDT continues to impose a significant burden, negatively impacting daily life, work, education, and social interactions. The availability of blood resources remains a critical issue, particularly in high-prevalence regions. The study highlights the need for ongoing research, innovative approaches, and enhanced support to ensure improved well-being for TDT patients and their caregivers.
Authors
- Gelsomina Simeone
- Maria Colonnese
- Domenico Roberti (ORCID: https://orcid.org/0000-0003-0948-3910)
- Chiara Baiano (ORCID: https://orcid.org/0000-0002-1662-6302)
- Gabriella Santangelo (ORCID: https://orcid.org/0000-0002-7728-852X)
- R. Lisi
- Antonio Piga (ORCID: https://orcid.org/0000-0002-2197-1899)
- Marcella Contieri (ORCID: https://orcid.org/0000-0002-8503-8475)
- Immacolata Tartaglione (ORCID: https://orcid.org/0000-0003-1278-2372)
- Angelo Perrotta
- F. Longo (ORCID: https://orcid.org/0000-0003-2501-2270)
- Francesca Gatta
- Annamaria Pasanisi
- Giovanni Battista Ferrero
- Silverio Perrotta
Institutions
- University of Campania "Luigi Vanvitelli" (IT)
- Ospedale A. Perrino (IT)
- Ospedale Garibaldi (IT)
- Arcispedale Sant'Anna (IT)
- University of Campania "Luigi Vanvitelli" (IT)
- AstraZeneca (Switzerland) (CH)
- Policlinico Universitario di Catania (IT)
- Azienda Ospedaliera Universitaria Università degli Studi della Campania Luigi Vanvitelli (IT)
- Alexion Pharma (Switzerland) (CH)
- University of Turin (IT)
Publication Details
- Journal
- Drugs - Real World Outcomes
- Published
- 2026-03-27
- DOI
- https://doi.org/10.1007/s40801-026-00545-x
- Primary Topic
- Hemoglobinopathies and Related Disorders
- Type
- article
- Field-Weighted Citation Impact
- 0.00