Community Health Worker–Integrated Model for Sickle Cell Disease Management: Protocol for a Feasibility Study

Despite national calls for improved care coordination and disease management in this population, few published protocols detail community-based, culturally aligned approaches that center on the lived experiences and structural barriers faced by adults with SCD. Our study addresses a gap in the literature by highlighting a theory-informed, multimethod study protocol for evaluating the feasibility, effectiveness, and acceptability of integrating CHWs into a patient-centered coordinated care model for adults with SCD. This protocol outlines a scalable, community-embedded strategy that may inform future clinical trials and implementation efforts.