Getting It Out There: Reflections on the Process and Impact of Public Engagement Activities in a Study on End‐of‐Life Care Planning With People With Intellectual Disabilities

The research team included four researchers with intellectual disabilities (A.C., D.J., L.J. and R.K.-B.). Researchers with intellectual disabilities have been part of every step of the research process; from study design to data collection and analysis to dissemination of study findings, including engagement activities. Palliative care and intellectual disability service provider representatives (G.A., M.W., N.P., R.H. and S.S.) have been closely involved throughout the project. The research was supported by a Research Advisory Group comprising a variety of stakeholders, including people with intellectual disabilities, families, representatives from intellectual disability and palliative care organisations, and policymakers.