Content validity assessment and modification of the FACE-Q craniofacial module for retinoblastoma survivors
The FACE-Q Craniofacial Module may be suitable to adapt for retinoblastoma survivors. The modifications resulting from this study ensure the tool comprehensively captures retinoblastoma-specific concerns, facilitating holistic and patient-centred clinical assessment and research. The next step in the adaptation of the FACE-Q Craniofacial Module is to psychometrically validate the modified version to ascertain its reliability and validity.
Authors
- Asim Ali (ORCID: https://orcid.org/0000-0001-5791-7918)
- Ashwin Mallipatna (ORCID: https://orcid.org/0000-0002-1354-2920)
- Roxanne Noronha
- Andra Striowski
- Michelle Prunier
- Ivana Ristevski (ORCID: https://orcid.org/0009-0006-0282-3395)
- Karen W.Y. Wong-Riff
- Genevieve Savoie
- Helen Dimaras
- Farheen Khan
Institutions
- University of Toronto (CA)
- Canadian Cardiovascular Society (CA)
- Hospital for Sick Children (CA)
- Advisory Board Company (United States) (US)
- Public Health Ontario (CA)
- Centre for Global Health Research (CA)
- North Toronto Eye Care (CA)
Publication Details
- Journal
- PLoS ONE
- Published
- 2026-03-26
- DOI
- https://doi.org/10.1371/journal.pone.0339657
- Primary Topic
- Ocular Disorders and Treatments
- Type
- article
- Field-Weighted Citation Impact
- 0.00