The PRO-CAR-T™ study: achieving excellence in patient and public involvement and engagement

Integrating excellent PPIE is achievable in PRO research, even in challenging contexts that involve life-threatening conditions and complex emerging therapies. Although barriers exist, our experience suggests many can be addressed and several actionable recommendations and resources are offered to strengthen PPIE in future PRO research.

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Publication Details

Journal
Journal of Patient-Reported Outcomes
Published
2026-03-24
DOI
https://doi.org/10.1186/s41687-026-01036-x
Primary Topic
Mental Health and Patient Involvement
Type
article
Field-Weighted Citation Impact
0.00
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article

The PRO-CAR-T™ study: achieving excellence in patient and public involvement and engagement

Journal of Patient-Reported Outcomes
Mental Health and Patient Involvement
article

The PRO-CAR-T™ study: achieving excellence in patient and public involvement and engagement

article en

Abstract

Integrating excellent PPIE is achievable in PRO research, even in challenging contexts that involve life-threatening conditions and complex emerging therapies. Although barriers exist, our experience suggests many can be addressed and several actionable recommendations and resources are offered to strengthen PPIE in future PRO research.

Journal of Patient-Reported Outcomes
University Hospitals Birmingham NHS Foundation Trust (GB), National Institute for Health and Care Research (GB), University of Oxford (GB), MRC Weatherall Institute of Molecular Medicine (GB), Oxford BioMedica (United Kingdom) (GB), NIHR Research Delivery Network (GB), NIHR Birmingham Biomedical Research Centre (GB), NIHR Applied Research Collaboration West (GB), University of Birmingham (GB)
Openalex Percentile: Top 14%
Mental Health and Patient Involvement
DOIOpen Access PDFOpenAlex
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The PRO-CAR-T™ study: achieving excellence in patient and public involvement and engagement · Journal of Patient-Reported Outcomes (2026) | TGRS Research Map | TGRS