Children’s experiences following parental stroke: An interpretive phenomenological analysis

Stroke is often a life-altering event for families. Guided by interpretative phenomenological analysis (IPA), this qualitative study aimed to understand the self-perceived impact of caregiver stroke on the lives, wellbeing and relationships of their children. Ten participants took part; aged 8-18 years when a substantial caregiver (nine fathers, one grandmother) had a stroke. Semi-structured interviews were audio-recorded and transcribed. Using IPA, individual-level analysis preceded the development of four group-level themes:<i> facing the unexpected; the need for family-centred information; redefined roles and relationships and changed perspectives.</i> The suddenness of caregiver stroke was an overwhelming emotional experience for children. They faced adjustments across several life domains including family relationships. Limited understanding of the impact of stroke on their caregiver and family life, contributed to distress and in some cases, relational tension. Children saw increased vulnerability in caregivers and took on additional responsibilities. Some described long-term shifts in their own personalities. This study recommends providing well-timed, family-specific and age-appropriate information to support children after caregiver stroke. Information sharing may support children’s adaptation to changes in their caregiver’s behaviour post-stroke, which may reduce the likelihood of relational tension. As most participants in this study had experienced paternal stroke, future research should explore maternal stroke.