“What did he say?” When access to epilepsy care fails at the bedside

• Access to epilepsy care can fail through misunderstanding, not lack of services. • The consequences of communication failures at the bedside are magnified in epilepsy care. • Equity in epilepsy care requires adapting communication to individual patients. • Clinicians must be aware that they shape access through empathy, clarity, and relational competence. Access to epilepsy care is most commonly framed in terms of infrastructure, cost, and availability of services. While these factors remain critical, they do not fully account for the ways in which access may fail at the point of care itself. This Short Communication reflects on a single clinical encounter in which effective communication broke down, revealing how access can be undermined by failures of comprehension rather than by overt structural barriers. Using this experience, the article argues that epilepsy uniquely magnifies the consequences of communication failures, given its chronicity, associated stigma, psychosocial burden, and the cognitive and emotional vulnerabilities many patients face. Access is reframed as a multifaceted construct that includes not only availability of services, but also the ability of patients to meaningfully engage with information and decision-making. The article further explores the distinction between equality and equity in epilepsy care, suggesting that equitable access requires adaptation of communication and interaction to individual patient contexts. While acknowledging the roles of health systems, institutions, and training environments, the article emphasizes the often-overlooked responsibility of individual clinicians in shaping access at the bedside. In an era of increasing technology utilization in healthcare, the paper underscores the continued importance of human connection, empathy, and relational competence in achieving meaningful access to epilepsy care

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Publication Details

Journal
Epilepsy & Behavior Reports
Published
2026-03-16
DOI
https://doi.org/10.1016/j.ebr.2026.100861
Primary Topic
Epilepsy research and treatment
Type
article
Field-Weighted Citation Impact
0.00
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article

“What did he say?” When access to epilepsy care fails at the bedside

Amza Ali
Epilepsy & Behavior Reports
Epilepsy research and treatment
article

“What did he say?” When access to epilepsy care fails at the bedside

Amza Ali
article en

Abstract

• Access to epilepsy care can fail through misunderstanding, not lack of services. • The consequences of communication failures at the bedside are magnified in epilepsy care. • Equity in epilepsy care requires adapting communication to individual patients. • Clinicians must be aware that they shape access through empathy, clarity, and relational competence. Access to epilepsy care is most commonly framed in terms of infrastructure, cost, and availability of services. While these factors remain critical, they do not fully account for the ways in which access may fail at the point of care itself. This Short Communication reflects on a single clinical encounter in which effective communication broke down, revealing how access can be undermined by failures of comprehension rather than by overt structural barriers. Using this experience, the article argues that epilepsy uniquely magnifies the consequences of communication failures, given its chronicity, associated stigma, psychosocial burden, and the cognitive and emotional vulnerabilities many patients face. Access is reframed as a multifaceted construct that includes not only availability of services, but also the ability of patients to meaningfully engage with information and decision-making. The article further explores the distinction between equality and equity in epilepsy care, suggesting that equitable access requires adaptation of communication and interaction to individual patient contexts. While acknowledging the roles of health systems, institutions, and training environments, the article emphasizes the often-overlooked responsibility of individual clinicians in shaping access at the bedside. In an era of increasing technology utilization in healthcare, the paper underscores the continued importance of human connection, empathy, and relational competence in achieving meaningful access to epilepsy care

Epilepsy & Behavior ReportsVol. 34
University of the West Indies System (JM), University of Technology, Jamaica (JM)
Gender equality
Openalex Percentile: Top 29%
Epilepsy research and treatment
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