Beyond individual autonomy: relational dimensions of the right not to know

This paper critically engages Jasper Debrabander's defence of the right not to know in the context of incidental findings. Although Debrabander reinforces the autonomy-based justification of this right against more demanding autonomy theories, his analysis remains grounded in an individualistic conception of the autonomous subject. I contend that this perspective is conceptually insufficient, as it fails to account for the relational dimensions of autonomy and its implications for the right not to know. Drawing on relational accounts of personhood, the paper develops a relational conception of autonomy and examines its consequences for disclosure decisions. It argues that such decisions reshape the relational conditions within which autonomy itself is formed and exercised-and why this dimension cannot be neglected in discussions of incidental findings and the right not to know.

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Publication Details

Journal
Journal of Medical Ethics
Published
2026-03-13
DOI
https://doi.org/10.1136/jme-2026-111926
Primary Topic
Philosophical Ethics and Theory
Type
article
Field-Weighted Citation Impact
0.00
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article

Beyond individual autonomy: relational dimensions of the right not to know

Max Tretter
Journal of Medical Ethics
Philosophical Ethics and Theory
article

Beyond individual autonomy: relational dimensions of the right not to know

Max Tretter
article en

Abstract

This paper critically engages Jasper Debrabander's defence of the right not to know in the context of incidental findings. Although Debrabander reinforces the autonomy-based justification of this right against more demanding autonomy theories, his analysis remains grounded in an individualistic conception of the autonomous subject. I contend that this perspective is conceptually insufficient, as it fails to account for the relational dimensions of autonomy and its implications for the right not to know. Drawing on relational accounts of personhood, the paper develops a relational conception of autonomy and examines its consequences for disclosure decisions. It argues that such decisions reshape the relational conditions within which autonomy itself is formed and exercised-and why this dimension cannot be neglected in discussions of incidental findings and the right not to know.

Journal of Medical Ethics
Friedrich-Alexander-Universität Erlangen-Nürnberg (DE)
Peace, Justice and strong institutions
Openalex Percentile: Top 21%
Philosophical Ethics and Theory
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