Using digital portals in paediatric rehabilitation: Remember the existing everyday tech

As an individual with lived experience, I am proof that technology can be an extremely valuable tool in coping with disabilities such as cerebral palsy (CP). There is also the importance of technology in relation to health and health promotion. I commend Kersalé et al. for their nuanced approach and for addressing many of the key aspects relevant to shared digital portals in paediatric rehabilitation.1 Like the authors, I am concerned about who should have access to patient data, as the power of such data is increasingly recognized, including to inform policies.2 In Denmark, many individuals with CP find their medical records and professional reports are sometimes misinterpreted and subsequently used to justify reductions in support and assistance by the authorities, despite the original intention often being the exact opposite. Therefore, continued and explicit attention to legal safeguards and informed consent in determining data access is essential. Along with Kersalé et al., I would like to emphasize the importance of accessibility in the portal or portals – with a focus on universal design.3 In this regard, it is important to stress that while neuromotor impairments present specific accessibility needs, the inclusion of cognitive challenges in the equation makes accessibility considerations even more critical. This includes not only technical and physical accessibility, but also cognitive and communicative accessibility – ensuring that information is understandable and usable. It is widely recognized that medical solutions are often poorly communicated when the target group does not resemble the physicians and programmers developing the solution. Genuine user involvement is therefore essential to ensure relevance and usability. Finally, I would stress the importance of integration with existing health-promoting technologies, such as Apple Watch, Fitbit, and similar platforms. Many individuals with disabilities, including individuals with CP, already use and subscribe to multiple digital health solutions. While the portal described in the article by Kersalé et al. is framed primarily within a medical and scientific context, it is important to recognize that new digital systems often fail to integrate with technologies that users already rely on. This lack of interoperability creates additional workload and confusion rather than empowerment. Not required.