Personal, Social, Economic Impacts on Haemophilia A Patients and Caregivers: A Mixed Method Study (WE CARE)

Haemophilia profoundly affects patients and caregivers, extending beyond physical symptoms to social, emotional, and economic challenges. The study underscores unmet needs arising from financial burden, stigma, and limited resources, emphasizing the need for patient-centred, holistic care models that integrate medical, psychosocial, and economic support in resource-limited settings.

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Publication Details

Journal
Haemophilia
Published
2026-03-12
DOI
https://doi.org/10.1111/hae.70256
Primary Topic
Hemophilia Treatment and Research
Type
article
Field-Weighted Citation Impact
0.00
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article

Personal, Social, Economic Impacts on Haemophilia A Patients and Caregivers: A Mixed Method Study (WE CARE)

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Haemophilia
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Personal, Social, Economic Impacts on Haemophilia A Patients and Caregivers: A Mixed Method Study (WE CARE)

Mridul Makkar, Himanshu Aggarwal, Diksha Sarwan, Ranjit Injety, Soumya Ojha, M. Joseph John, Manasi Gupta
article en

Abstract

Haemophilia profoundly affects patients and caregivers, extending beyond physical symptoms to social, emotional, and economic challenges. The study underscores unmet needs arising from financial burden, stigma, and limited resources, emphasizing the need for patient-centred, holistic care models that integrate medical, psychosocial, and economic support in resource-limited settings.

Haemophilia
Christian Medical College, Vellore (IN), Ulverscroft (United Kingdom) (GB), Christian Medical College (IN)
No poverty
Openalex Percentile: Top 24%
Hemophilia Treatment and Research
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