Personal, Social, Economic Impacts on Haemophilia A Patients and Caregivers: A Mixed Method Study (WE CARE)
Haemophilia profoundly affects patients and caregivers, extending beyond physical symptoms to social, emotional, and economic challenges. The study underscores unmet needs arising from financial burden, stigma, and limited resources, emphasizing the need for patient-centred, holistic care models that integrate medical, psychosocial, and economic support in resource-limited settings.
Authors
- Mridul Makkar (ORCID: https://orcid.org/0000-0002-7129-4734)
- Himanshu Aggarwal (ORCID: https://orcid.org/0000-0003-1398-4582)
- Diksha Sarwan
- Ranjit Injety
- Soumya Ojha
- M. Joseph John
- Manasi Gupta
Institutions
- Christian Medical College, Vellore (IN)
- Ulverscroft (United Kingdom) (GB)
- Christian Medical College (IN)
Publication Details
- Journal
- Haemophilia
- Published
- 2026-03-12
- DOI
- https://doi.org/10.1111/hae.70256
- Primary Topic
- Hemophilia Treatment and Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00