When genomics companies act as biobanks: governance challenges in an era of genomic assetization

These findings highlight the need for governance approaches that better reflect todays interconnected biobanking ecosystem, which includes public and nonprofit biobanks, government-academic-industry collaborations, and companies operating as <i>de facto</i> biobanks. Strengthening governance may require clearer planning for closure and transition, including limits on the transfer or sale of data and biospecimens during restructuring, possible roles for public stewardship, and a more explicit role for established biobanking institutions in developing shared governance standards across the genomics ecosystem.

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Publication Details

Journal
Frontiers in Genetics
Published
2026-03-11
DOI
https://doi.org/10.3389/fgene.2026.1778236
Primary Topic
Ethics in Clinical Research
Type
article
Field-Weighted Citation Impact
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article

When genomics companies act as biobanks: governance challenges in an era of genomic assetization

Alexis Walker
Frontiers in Genetics
Ethics in Clinical Research
article

When genomics companies act as biobanks: governance challenges in an era of genomic assetization

Alexis Walker
article en

Abstract

These findings highlight the need for governance approaches that better reflect todays interconnected biobanking ecosystem, which includes public and nonprofit biobanks, government-academic-industry collaborations, and companies operating as <i>de facto</i> biobanks. Strengthening governance may require clearer planning for closure and transition, including limits on the transfer or sale of data and biospecimens during restructuring, possible roles for public stewardship, and a more explicit role for established biobanking institutions in developing shared governance standards across the genomics ecosystem.

Frontiers in GeneticsVol. 17
Cal Humanities (US)
Industry, innovation and infrastructure
Openalex Percentile: Top 30%
Ethics in Clinical Research
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