When genomics companies act as biobanks: governance challenges in an era of genomic assetization
These findings highlight the need for governance approaches that better reflect todays interconnected biobanking ecosystem, which includes public and nonprofit biobanks, government-academic-industry collaborations, and companies operating as <i>de facto</i> biobanks. Strengthening governance may require clearer planning for closure and transition, including limits on the transfer or sale of data and biospecimens during restructuring, possible roles for public stewardship, and a more explicit role for established biobanking institutions in developing shared governance standards across the genomics ecosystem.
Authors
- Alexis Walker
Institutions
- Cal Humanities (US)
Publication Details
- Journal
- Frontiers in Genetics
- Published
- 2026-03-11
- DOI
- https://doi.org/10.3389/fgene.2026.1778236
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00