Caring in Context: Development of a Family-Centred and Cross-Sectoral Framework to Support Young Carers

<b>Background/Objectives:</b> Children and adolescents who care for family members with illness, disability, or mental health conditions face challenges across educational, health, and psychosocial domains. Although research and practice have developed conceptual models and assessment tools to better understand and address young carers' situations, a persistent gap remains between their needs and available support, reflecting structural fragmentation across health, education, and social care systems. To address this gap, this article presents the development of a family-centred framework spanning these sectors. <b>Methods:</b> The framework was developed through an iterative, empirically grounded process based on two studies within a larger research project on young carers in Switzerland. Key themes, structural challenges, and support-related factors were identified by systematically synthesising the findings of the two studies and integrated into an overarching framework linking young carers' family contexts with cross-sectoral service structures. <b>Results:</b> The <i>Caring in Context Framework</i> synthesises empirical findings into a coherent framework for understanding and addressing young carers' situations. By systematically extending the whole family approach to include a cross-sectoral dimension, it bridges relational family dynamics and structural service contexts. Sustainable support is conceptualised as dependent on the structural visibility and institutional recognition of young carers across all system levels, positioning identification and recognition as prerequisites for coordinated responses in research, policy, and practice. <b>Conclusion:</b> The framework advances conceptual clarity by integrating family-centred and cross-sectoral perspectives. Rather than creating new services, it emphasises adapting and coordinating existing structures while ensuring systematic recognition of young carers to support coherent, sustainable, and inclusive strategies.

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Publication Details

Journal
Healthcare
Published
2026-03-11
DOI
https://doi.org/10.3390/healthcare14060712
Primary Topic
Family Support in Illness
Type
article
Field-Weighted Citation Impact
0.00
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article

Caring in Context: Development of a Family-Centred and Cross-Sectoral Framework to Support Young Carers

Marianne Frech, S. Kaiser, Anna-Maria Spittel, Martin Nagl-Cupal
Healthcare
Family Support in Illness
article

Caring in Context: Development of a Family-Centred and Cross-Sectoral Framework to Support Young Carers

Marianne Frech, S. Kaiser, Anna-Maria Spittel, Martin Nagl-Cupal
article en

Abstract

<b>Background/Objectives:</b> Children and adolescents who care for family members with illness, disability, or mental health conditions face challenges across educational, health, and psychosocial domains. Although research and practice have developed conceptual models and assessment tools to better understand and address young carers' situations, a persistent gap remains between their needs and available support, reflecting structural fragmentation across health, education, and social care systems. To address this gap, this article presents the development of a family-centred framework spanning these sectors. <b>Methods:</b> The framework was developed through an iterative, empirically grounded process based on two studies within a larger research project on young carers in Switzerland. Key themes, structural challenges, and support-related factors were identified by systematically synthesising the findings of the two studies and integrated into an overarching framework linking young carers' family contexts with cross-sectoral service structures. <b>Results:</b> The <i>Caring in Context Framework</i> synthesises empirical findings into a coherent framework for understanding and addressing young carers' situations. By systematically extending the whole family approach to include a cross-sectoral dimension, it bridges relational family dynamics and structural service contexts. Sustainable support is conceptualised as dependent on the structural visibility and institutional recognition of young carers across all system levels, positioning identification and recognition as prerequisites for coordinated responses in research, policy, and practice. <b>Conclusion:</b> The framework advances conceptual clarity by integrating family-centred and cross-sectoral perspectives. Rather than creating new services, it emphasises adapting and coordinating existing structures while ensuring systematic recognition of young carers to support coherent, sustainable, and inclusive strategies.

HealthcareVol. 14(6)
University of Vienna (AT), Carl von Ossietzky Universität Oldenburg (DE), Europa-Universität Flensburg (DE), Solothurner Spitäler (CH)
Openalex Percentile: Top 32%
Family Support in Illness
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