Family perspectives on independent living for adults with cerebral palsy: barriers, support needs, and quality of life

The findings suggest that independent living for adults with CP is constrained less by individual attitudes than by structural, organizational, and relational conditions. Families play a pivotal role in sustaining autonomy, often at considerable personal cost, which may in turn limit both caregiver well-being and the autonomy of the person with CP. Strengthening rights-based, personalized, and adequately resourced support systems, together with sustained training and emotional support for families, is essential to advance independent living and inclusive community participation for adults with CP.

Authors

Institutions

Publication Details

Journal
Frontiers in Psychiatry
Published
2026-03-11
DOI
https://doi.org/10.3389/fpsyt.2026.1785081
Primary Topic
Cerebral Palsy and Movement Disorders
Type
article
Field-Weighted Citation Impact
0.00
Controls
|||
ALL TIME
JAN
FEB
MAR
APR
MAY
JUN
JUL
AUG
SEP
OCT
article

Family perspectives on independent living for adults with cerebral palsy: barriers, support needs, and quality of life

Virginia Aguayo, Miguel Ángel Verdugo, Laura García-Domínguez, Laura Esteban
Frontiers in Psychiatry
Cerebral Palsy and Movement Disorders
article

Family perspectives on independent living for adults with cerebral palsy: barriers, support needs, and quality of life

Virginia Aguayo, Miguel Ángel Verdugo, Laura García-Domínguez, Laura Esteban
article en

Abstract

The findings suggest that independent living for adults with CP is constrained less by individual attitudes than by structural, organizational, and relational conditions. Families play a pivotal role in sustaining autonomy, often at considerable personal cost, which may in turn limit both caregiver well-being and the autonomy of the person with CP. Strengthening rights-based, personalized, and adequately resourced support systems, together with sustained training and emotional support for families, is essential to advance independent living and inclusive community participation for adults with CP.

Frontiers in PsychiatryVol. 17
Universidad de Salamanca (ES)
Reduced inequalities
Openalex Percentile: Top 35%
Cerebral Palsy and Movement Disorders
AI Navigator

Ask Laika to Summarize, Analyze, and Connect papers live on the map.

Summarize Papers & Methodologies

Extract key findings, datasets, and comparative methods across publications.

Benchmark Rankings & Visual Analytics

Rank top research institutions, authors, funders, topics, and journals by Field-Weighted Citation Impact (FWCI) and paper volume with instant charts.

Connect Distant Disciplines

Bridge topological clusters on the map to find hidden collaborative intersections.