Family perspectives on independent living for adults with cerebral palsy: barriers, support needs, and quality of life
The findings suggest that independent living for adults with CP is constrained less by individual attitudes than by structural, organizational, and relational conditions. Families play a pivotal role in sustaining autonomy, often at considerable personal cost, which may in turn limit both caregiver well-being and the autonomy of the person with CP. Strengthening rights-based, personalized, and adequately resourced support systems, together with sustained training and emotional support for families, is essential to advance independent living and inclusive community participation for adults with CP.
Authors
- Virginia Aguayo (ORCID: https://orcid.org/0000-0003-1420-6918)
- Miguel Ángel Verdugo
- Laura García-Domínguez
- Laura Esteban
Institutions
- Universidad de Salamanca (ES)
Publication Details
- Journal
- Frontiers in Psychiatry
- Published
- 2026-03-11
- DOI
- https://doi.org/10.3389/fpsyt.2026.1785081
- Primary Topic
- Cerebral Palsy and Movement Disorders
- Type
- article
- Field-Weighted Citation Impact
- 0.00