A Culturally Congruent Psychosocial Intervention for Latino Caregivers of Children with Cancer: Intervention Development

<b>Background</b>: Cancer health disparities among Latinos in the United States are pervasive and manifest in higher morbidity and mortality among pediatric cancer patients and their parents/caregivers. There is a need to engage in culturally congruent approaches to develop interventions that effectively mitigate cancer health disparities among Latino caregivers. <b>Aims</b>: The purpose of this manuscript is to present the methodological process of adopting a community-based participatory research (CBPR) approach to develop a culturally congruent intervention to address psychosocial cancer health disparities in Spanish-speaking Latino families impacted by childhood cancer. <b>Materials and Methods</b>: We established two partnerships with Spanish-speaking parents of children previously treated for cancer and whose children were currently undergoing cancer treatment to collaboratively identify psychosocial intervention targets. A total of 22 meetings were held with community collaborators (<i>n</i> = 13) that followed CBPR principles. All meetings were audio recorded, transcribed, and coded using an inductive approach. <b>Results</b>: The intervention framework identified three psychosocial outcomes: caregiver health literacy, culturally congruent care, and emotional well-being. A 12-session intervention addressing the three outcomes was developed integrating cultural values and bilingual and bicultural community and healthcare providers. <b>Conclusions</b>: A CBPR approach was adopted to address disparities in quality of life in Spanish-speaking caregivers of children with cancer, which resulted in a multicomponent intervention that addresses the informational, practical, and psychosocial needs of Latino caregivers. The intervention can help mitigate disparities in well-being for Latino families impacted by childhood cancer by incorporating culturally relevant strategies to optimize health.

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Publication Details

Journal
Children
Published
2026-03-05
DOI
https://doi.org/10.3390/children13030369
Primary Topic
Childhood Cancer Survivors' Quality of Life
Type
article
Field-Weighted Citation Impact
0.00
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article

A Culturally Congruent Psychosocial Intervention for Latino Caregivers of Children with Cancer: Intervention Development

Lessley B. Torres, Haydee G. Cortes, Zeev N. Kain, Michelle A. Fortier et al.
Children
Childhood Cancer Survivors' Quality of Life
article

A Culturally Congruent Psychosocial Intervention for Latino Caregivers of Children with Cancer: Intervention Development

Lessley B. Torres, Haydee G. Cortes, Zeev N. Kain, Michelle A. Fortier, Lilibeth Ramilo Torno, Belinda Campos, Sonia Morales, Carol Lin
article en

Abstract

<b>Background</b>: Cancer health disparities among Latinos in the United States are pervasive and manifest in higher morbidity and mortality among pediatric cancer patients and their parents/caregivers. There is a need to engage in culturally congruent approaches to develop interventions that effectively mitigate cancer health disparities among Latino caregivers. <b>Aims</b>: The purpose of this manuscript is to present the methodological process of adopting a community-based participatory research (CBPR) approach to develop a culturally congruent intervention to address psychosocial cancer health disparities in Spanish-speaking Latino families impacted by childhood cancer. <b>Materials and Methods</b>: We established two partnerships with Spanish-speaking parents of children previously treated for cancer and whose children were currently undergoing cancer treatment to collaboratively identify psychosocial intervention targets. A total of 22 meetings were held with community collaborators (<i>n</i> = 13) that followed CBPR principles. All meetings were audio recorded, transcribed, and coded using an inductive approach. <b>Results</b>: The intervention framework identified three psychosocial outcomes: caregiver health literacy, culturally congruent care, and emotional well-being. A 12-session intervention addressing the three outcomes was developed integrating cultural values and bilingual and bicultural community and healthcare providers. <b>Conclusions</b>: A CBPR approach was adopted to address disparities in quality of life in Spanish-speaking caregivers of children with cancer, which resulted in a multicomponent intervention that addresses the informational, practical, and psychosocial needs of Latino caregivers. The intervention can help mitigate disparities in well-being for Latino families impacted by childhood cancer by incorporating culturally relevant strategies to optimize health.

ChildrenVol. 13(3)
University of California, Irvine (US), Rady Children's Hospital-San Diego (US), UC Irvine Health (US), Irvine University (US)
Quality Education
Openalex Percentile: Top 32%
Childhood Cancer Survivors' Quality of Life
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