A Culturally Congruent Psychosocial Intervention for Latino Caregivers of Children with Cancer: Intervention Development
<b>Background</b>: Cancer health disparities among Latinos in the United States are pervasive and manifest in higher morbidity and mortality among pediatric cancer patients and their parents/caregivers. There is a need to engage in culturally congruent approaches to develop interventions that effectively mitigate cancer health disparities among Latino caregivers. <b>Aims</b>: The purpose of this manuscript is to present the methodological process of adopting a community-based participatory research (CBPR) approach to develop a culturally congruent intervention to address psychosocial cancer health disparities in Spanish-speaking Latino families impacted by childhood cancer. <b>Materials and Methods</b>: We established two partnerships with Spanish-speaking parents of children previously treated for cancer and whose children were currently undergoing cancer treatment to collaboratively identify psychosocial intervention targets. A total of 22 meetings were held with community collaborators (<i>n</i> = 13) that followed CBPR principles. All meetings were audio recorded, transcribed, and coded using an inductive approach. <b>Results</b>: The intervention framework identified three psychosocial outcomes: caregiver health literacy, culturally congruent care, and emotional well-being. A 12-session intervention addressing the three outcomes was developed integrating cultural values and bilingual and bicultural community and healthcare providers. <b>Conclusions</b>: A CBPR approach was adopted to address disparities in quality of life in Spanish-speaking caregivers of children with cancer, which resulted in a multicomponent intervention that addresses the informational, practical, and psychosocial needs of Latino caregivers. The intervention can help mitigate disparities in well-being for Latino families impacted by childhood cancer by incorporating culturally relevant strategies to optimize health.
Authors
- Lessley B. Torres
- Haydee G. Cortes
- Zeev N. Kain (ORCID: https://orcid.org/0000-0001-5819-9196)
- Michelle A. Fortier (ORCID: https://orcid.org/0000-0001-8896-3650)
- Lilibeth Ramilo Torno (ORCID: https://orcid.org/0000-0003-3511-8896)
- Belinda Campos
- Sonia Morales (ORCID: https://orcid.org/0000-0002-4629-0993)
- Carol Lin
Institutions
- University of California, Irvine (US)
- Rady Children's Hospital-San Diego (US)
- UC Irvine Health (US)
- Irvine University (US)
Publication Details
- Journal
- Children
- Published
- 2026-03-05
- DOI
- https://doi.org/10.3390/children13030369
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 0.00