Bridging the gap: understanding participation barriers in ALS clinical trials through on-the-ground insights
Tailored communication strategies that leverage established relationships between pALS and their trusted healthcare providers may enhance research participation. As decentralized research models evolve, improving trial education and access and fostering knowledge and trust could significantly boost enrollment in ALS clinical research.
Authors
- Elisa Giacomelli (ORCID: https://orcid.org/0000-0001-9233-235X)
- Danielle M. Boyce (ORCID: https://orcid.org/0000-0002-5206-7552)
- Judith Carey
- Sabrina Paganoni
- James D. Berry
- Allison Pogemiller Bulat
- Erica Scirocco
Institutions
- Harvard University (US)
- Johns Hopkins University (US)
- Spaulding Rehabilitation Hospital (US)
- Johns Hopkins Medicine (US)
- Amyotrophic Lateral Sclerosis Therapy Development Institute (US)
- Amyotrophic Lateral Sclerosis Association (US)
- Center for Cancer Research (US)
Publication Details
- Journal
- Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration
- Published
- 2026-03-05
- DOI
- https://doi.org/10.1080/21678421.2026.2640126
- Primary Topic
- Amyotrophic Lateral Sclerosis Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00