ICF-Based Mapping of Outcome Measures in Children and Adolescents with Achondroplasia and Their Parents : A Scoping Review”

This scoping review seeks to identify the measurement instruments and assessment methodologies employed and/or recommended for evaluating children with achondroplasia and their parents. Furthermore, it aims to map the domains assessed by these instruments within the context of the International Classification of Functioning, Disability and Health (ICF) framework. The review will systematically evaluate the diversity of measurement approaches and identify potential gaps in the existing literature, thereby providing an evidence-based framework to guide future research endeavors.

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Publication Details

Journal
Open Science Framework
Published
2025-12-06
DOI
https://doi.org/10.17605/osf.io/fns9q
Primary Topic
Connective tissue disorders research
Type
article
Field-Weighted Citation Impact
0.00
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article

ICF-Based Mapping of Outcome Measures in Children and Adolescents with Achondroplasia and Their Parents : A Scoping Review”

MİNTAZE KEREM GÜNEL, BÜŞRA ŞAHİN, YASEMİN ALANAY, ZEHRA AYCAN
Open Science Framework
Connective tissue disorders research
article

ICF-Based Mapping of Outcome Measures in Children and Adolescents with Achondroplasia and Their Parents : A Scoping Review”

MİNTAZE KEREM GÜNEL, BÜŞRA ŞAHİN, YASEMİN ALANAY, ZEHRA AYCAN
article en

Abstract

This scoping review seeks to identify the measurement instruments and assessment methodologies employed and/or recommended for evaluating children with achondroplasia and their parents. Furthermore, it aims to map the domains assessed by these instruments within the context of the International Classification of Functioning, Disability and Health (ICF) framework. The review will systematically evaluate the diversity of measurement approaches and identify potential gaps in the existing literature, thereby providing an evidence-based framework to guide future research endeavors.

Open Science Framework
Quality Education
Openalex Percentile: Top 20%
Connective tissue disorders research
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