Sharing EHR data of patients with rare diseases for research - The role of quality assessments in a national federated research data infrastructure

Authors

Institutions

Publication Details

Journal
BMC Medical Informatics and Decision Making
Published
2026-03-02
DOI
https://doi.org/10.1186/s12911-025-03153-x
Primary Topic
Genomics and Rare Diseases
Type
article
Field-Weighted Citation Impact
0.00
Controls
|||
ALL TIME
JAN
FEB
MAR
APR
MAY
JUN
JUL
AUG
SEP
OCT
article

Sharing EHR data of patients with rare diseases for research - The role of quality assessments in a national federated research data infrastructure

Stephanie Biergans, Raphael Verbuecheln, Holm Graessner, D. Krefting et al.
BMC Medical Informatics and Decision Making
Genomics and Rare Diseases
article

Sharing EHR data of patients with rare diseases for research - The role of quality assessments in a national federated research data infrastructure

Stephanie Biergans, Raphael Verbuecheln, Holm Graessner, D. Krefting, Kais Tahar, Tamara Martin
article en

Abstract

No abstract available for this paper.
BMC Medical Informatics and Decision MakingVol. 26(1)
University Children's Hospital Tübingen (DE), University Hospital Magdeburg (DE), University of Göttingen (DE)
Industry, innovation and infrastructure
Openalex Percentile: Top 37%
Genomics and Rare Diseases
DOIOpen Access PDFOpenAlex
AI Navigator

Ask Laika to Summarize, Analyze, and Connect papers live on the map.

Summarize Papers & Methodologies

Extract key findings, datasets, and comparative methods across publications.

Benchmark Rankings & Visual Analytics

Rank top research institutions, authors, funders, topics, and journals by Field-Weighted Citation Impact (FWCI) and paper volume with instant charts.

Connect Distant Disciplines

Bridge topological clusters on the map to find hidden collaborative intersections.