Standardized prospective multidisciplinary follow-up of patients with surgical congenital malformations: A model for continuous data driven improvement of health care

Prospective multidisciplinary follow-up in patients with surgical congenital malformations offers the possibility to standardize outcome measurements including patient-reported outcomes, thus allowing for 1) early recognition and intervention for poor outcome, thus improving patient outcome, 2) improvement of quality of healthcare by conducting outcome evaluation, and 3) a contribution to research on outcome and prognosis of patients with surgical congenital malformations.