Parent-to-parent recommendations for coping with congenital heart disease: a mixed-methods study
Recommendations from parents provide direct advice for others facing new diagnoses and outline actionable steps for clinicians hoping to support those receiving a CHD diagnosis. Clinicians may acknowledge challenges, help parents reflect on what they can and cannot control and empower parents by providing comprehensible information and connecting them to other parents.
Authors
- Rebecca A. Dorner (ORCID: https://orcid.org/0000-0003-4865-0435)
- Magdalena Jaworski
- Carl H. Backes (ORCID: https://orcid.org/0000-0001-5286-890X)
- Annie Janvier
- Chloe Barsoum
- Karolane Maltais
- Lauren Capaci
- Katharine Press Callahan
- Thuy Mai Luu
- Catherine Martin
Institutions
- Nationwide Children's Hospital (US)
- Children's Hospital of Philadelphia (US)
- Centre Hospitalier Universitaire Sainte-Justine (CA)
- Sharp Mary Birch Hospital for Women & Newborns (US)
- Université de Montréal (CA)
- University of Pennsylvania (US)
Publication Details
- Journal
- Archives of Disease in Childhood
- Published
- 2026-02-26
- DOI
- https://doi.org/10.1136/archdischild-2025-330145
- Primary Topic
- Congenital Heart Disease Studies
- Type
- article
- Field-Weighted Citation Impact
- 0.00