Test-Retest Reliability of Remote Assessments in Patients With Myotonic Dystrophy Type 1
Remote assessments are feasible and safe. Many measurements demonstrate high reliability, show adequate measurement sensitivity, and correlate with PROs. These findings support remote research, facilitating broad participation, and reducing participant burden.
Authors
- Eleanor Stanton
- Jeanne Dekdebrun
- Chandani Warnasooriya
- Johanna Hamel (ORCID: https://orcid.org/0000-0002-4851-7637)
- Katy Eichinger
- Mikaella Docteur
- Erin Richardson
- Laura Tufano
Institutions
- University of Rochester Medical Center (US)
- Sapienza University of Rome (IT)
Publication Details
- Journal
- Neurology
- Published
- 2026-02-25
- DOI
- https://doi.org/10.1212/wnl.0000000000214615
- Primary Topic
- Genetic Neurodegenerative Diseases
- Type
- article
- Field-Weighted Citation Impact
- 0.00